Being the first meeting for this connect group, let's keep the agenda light!  The hope is to meet with parents in our area to identify topics of interest to address moving forward (504s, latest healthcare initiatives, medical guest speakers....).  The main purpose of this group is to connect with each other for support.  Only we know what it is like to watch our children combat the struggles and symptoms that come with their disease, and sometimes we need to know there are others out there feeling the same way.  Hope to see all the NJ and PA parents there! 

There will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings. 

We respect privacy and confidentiality and do not record our online meetings. 

Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required, nor having a Zoom account. A confirmation email will be sent upon registration with the Zoom link. If you do not receive the registration confirmation, please check your spam folder. Please plan to log in a few minutes early. 

We look forward to seeing you soon!