So much has changed in the world of EDS. It is quite amazing. I was in a minor car accident a month ago and one of the firemen that came knew well what EDS was. That would have not happened when my daughters were first diagnosed. The care that our children are getting is changing. This meeting let’s chat about how things are going as we meet with providers and specialists: what is working, and what concerns we still have. Let’s meet on Sunday, May 5th at 7 pm ET / 6 pm CT / 5 pm MT / 4 pm PT for our next event.

After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings. 

We respect privacy and confidentiality and do not record our online meetings. 

Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required, nor having a Zoom account. A confirmation email will be sent upon registration with the Zoom link. If you do not receive the registration confirmation, please check your spam folder. Please plan to log in a few minutes early. 

We look forward to seeing you soon!