Welcome to the
Parents of Elementary School Students with JA Connect Group
Parents of Elementary School Students with JA
123 Members
This online group serves parents of children living with Juvenile Arthritis who are in elementary school or younger from across the country. We invite those who are looking for support, education, robust programming, expert speakers, and connection to join us and meet others who understand children in this life stage.
Live Yes! Connect Groups for JA Parents provide connections, education, and empowerment for parents and caregivers with children living with rheumatic disease. JA Parents come together for professional and volunteer-led sessions on a variety of topics and group activities as it relates to raising a child with arthritis.
Participants gain skills to advocate for their child, help their child develop self-management skills, and discover strategies for daily living. These groups are part of an expanding range of Arthritis Foundation resources that provides personalized help & support to parents who have a child/teen with a childhood rheumatic disease.
Upcoming Events
-
Tuesday November 7th 20238:00 PM ET1h
-
Virtual Event
- 9 people attending
Join us on November 7, 2023 at 8 pm ET / 7 pm CT / 6 pm MT / 5 pm PT for our next 60 minute event to discuss school updates, any roadblocks you encountered and upcoming Holiday plans. In addition, we would like to solicit ideas for upcoming meetings that you as JA parents would like to discuss. We’ll have some fun group activities for everyone to participate in. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings. We respect privacy and confidentiality and do not record our online meetings. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent the day of the event to those who RSVP. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you soon!
- Event List
-
Tuesday November 7th 20238:00 PM ET1h
-
Virtual Event
- 9 people attending
Join us on November 7, 2023 at 8 pm ET / 7 pm CT / 6 pm MT / 5 pm PT for our next 60 minute event to discuss school updates, any roadblocks you encountered and upcoming Holiday plans. In addition, we would like to solicit ideas for upcoming meetings that you as JA parents would like to discuss. We’ll have some fun group activities for everyone to participate in. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings. We respect privacy and confidentiality and do not record our online meetings. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent the day of the event to those who RSVP. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you soon!
Facilitators [2]
Members [123]
You must log in to read and comment.
Connect Group - National - JA Parent Elementary School and Younger
Comment
Comments [11]
Hi everyone. My daughter who is two was recently diagnosed with JIA. Does anyone recommend her taking Methotrexate? I am so afraid of the side effects. She's already on a steroid and it went from her ankle to her fingers. She's so young and I really want to do what's best for her. Please help 💕
Hi all! Just joined here but my 6.5 year old daughter has had SJIA for about 2 years now. I'm looking forward to connecting with other SJIA families!
📌 Wanna chat with JA Parents? Head over to he online community Forums and log in with your Connect Group credentials - https://liveyes.arthritis.org/#/Posts/6
What natural remedies have you tried for your child as far as treating JIA?
Hello!!
Tonights February 15th's link for zoom meeting is https://arthritisfoundation.zoom.us/meeting/register/tZArcuyppz8jGtPIreDIZ2BGNXfA8brv92nT
We will meet promptly at 8pm ET/ 7pm CT/ 6pm MT/ 4pm PT to discuss pain relief strategies with our kids.
Can't wait to see you there!!
5pm PT for February 15th
Hello! My name is Robin and my 7 year old daughter has systemic JIA. She was diagnosed when she was 3 and was on medication for about a year, then went into remission. She recently had a severe flare so she's back on medication and we're thinking more long-term now as we've seen the disease return. Looking forward to connecting with other families here :)
Do you want to connect with others between meetings?
Visit the Online Community at https://liveyes.arthritis.org and find the JA Parent to Parrent Discussion
Hello, my 3.5 year old son was diagnosed with Extended Oligoarticular JIA about a year ago. He has been on Methotraxate and Humira since then. They have some side effects, the main one being loss of appetite and burping. I wanted to learn from other parents on a couple of topics:
1. Have you pursued any physical therapy and have they worked?
2. Any insights on complementary treatments including change in nutrition that have worked for you.
My son has definitely improved but he is less active than other kids his age. So trying to see what I can do to help.
Hey everyone! I'm the mom of an 11 year old 5th grade girl that lives with juvenile arthritis. Just looking to connect with others and to find support with all that this experience brings! I hope to connect soon!
Hi we have a 5th grader daughter with arthritis too who may be going thru similar stuff as yours. Hope to connect.
Hi Dasha,
My 7 year old daughter has JIA and we're interested in connecting with other families as well.
Hello,
Im looking forward to this group as I navigate finding the best team of doctors for treatment of JIA for my 5 year old.
Hi Kathleen,
My 7 year old daughter has sJIA. Sending you lots of strength and support on this journey.
Hi Kathleen!
Hi,
I am registered for the presentation today, but have not received a zoom link, just a confirmation email. I have checked my inbox and spam email. Is there another way to get the link? This happened to another webinar I tried to attend, I just don't want to be missing a step.
Thanks,
Erin