Welcome to the

Parents of Elementary School Students with JA Connect Group

Parents of Elementary School Students with JA
146 Members

This online group serves parents of children living with Juvenile Arthritis who are in elementary school or younger from across the country. We invite those who are looking for support, education, robust programming, expert speakers, and connection to join us and meet others who understand children in this life stage.

Live Yes! Connect Groups for JA Parents provide connections, education, and empowerment for parents and caregivers with children living with rheumatic disease. JA Parents come together for professional and volunteer-led sessions on a variety of topics and group activities as it relates to raising a child with arthritis.  

Participants gain skills to advocate for their child, help their child develop self-management skills, and discover strategies for daily living. These groups are part of an expanding range of Arthritis Foundation resources that provides personalized help & support to parents who have a child/teen with a childhood rheumatic disease.   
 

Upcoming Events

  • Tuesday, May 7th, 2024
    8:00 PM ET
    1h 30m
  • Virtual Event
  •   1 person attending
Parents of Elementary School Students with JA Connect Group - Supporting Your Child’s Nutritional Needs

Join us on Tuesday May 7th at 8 pm Eastern / 7 pm Central / 6 pm Mountain/ 5 pm Pacific for our next 90-minute event.

During this interactive conversation, Deb Constien, a retired Registered Dietitian and mom living with arthritis will facilitate a conversation about supporting your child’s nutritional needs while living with JA.

Together, we'll explore practical strategies to help your child thrive and:

  • Gain knowledge about basic nutrition concepts and helpful tips for picky eaters.
  • Discover creative meal and snack ideas while involving children in food choices.
  • Learn about the science behind promoting overall well-being through nutritious eating habits.

You won’t want to miss this opportunity to share experiences, ask questions and empower yourself with the knowledge to fuel your young arthritis warrior’s body and well-being.

To help tailor the session to your needs, please submit your questions by no later than April 22 via this webform: https://forms.office.com/r/JG7jswcVz1

After our presentation, there will be time to connect with others.

Friends, Family, and Care Partners are always welcome to join meetings.

We respect privacy and confidentiality and do not record our online meetings.

Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required, nor having a Zoom account. A confirmation email will be sent upon registration with the Zoom link. If you do not receive the registration confirmation, please check your spam folder. Please plan to log in a few minutes early.

We look forward to seeing you soon!

 This is a Virtual Event. 
Facilitator(s)
Members
  • Event List
Arthritis Foundation Event
  • Tuesday, May 7th, 2024
    8:00 PM ET
    1h 30m
  • Virtual Event
  •   1 person attending
Parents of Elementary School Students with JA Connect Group - Supporting Your Child’s Nutritional Needs

Join us on Tuesday May 7th at 8 pm Eastern / 7 pm Central / 6 pm Mountain/ 5 pm Pacific for our next 90-minute event.

During this interactive conversation, Deb Constien, a retired Registered Dietitian and mom living with arthritis will facilitate a conversation about supporting your child’s nutritional needs while living with JA.

Together, we'll explore practical strategies to help your child thrive and:

  • Gain knowledge about basic nutrition concepts and helpful tips for picky eaters.
  • Discover creative meal and snack ideas while involving children in food choices.
  • Learn about the science behind promoting overall well-being through nutritious eating habits.

You won’t want to miss this opportunity to share experiences, ask questions and empower yourself with the knowledge to fuel your young arthritis warrior’s body and well-being.

To help tailor the session to your needs, please submit your questions by no later than April 22 via this webform: https://forms.office.com/r/JG7jswcVz1

After our presentation, there will be time to connect with others.

Friends, Family, and Care Partners are always welcome to join meetings.

We respect privacy and confidentiality and do not record our online meetings.

Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required, nor having a Zoom account. A confirmation email will be sent upon registration with the Zoom link. If you do not receive the registration confirmation, please check your spam folder. Please plan to log in a few minutes early.

We look forward to seeing you soon!

 This is a Virtual Event. 
Facilitators [2]
Members [146]

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Connect Group - National - JA Parent Elementary School and Younger

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Comments [9]
Michelle  C
Michelle C
September 22, 2023 - 2:31 AM

Hi everyone. My daughter who is two was recently diagnosed with JIA. Does anyone recommend her taking Methotrexate? I am so afraid of the side effects. She's already on a steroid and it went from her ankle to her fingers. She's so young and I really want to do what's best for her. Please help 💕

Cooper P
Cooper P
January 25, 2024 - 4:17 PM

Hi Michelle and Alex! Like you guys, my son was diagnosed last year with JIA at 3 yrs old. It's been incredibly tough and an emotional roller coaster for the whole family. We did two rounds of steroid shots in both knees and ankles but it wore off both times within 3-4 weeks unfortunately. So we are seriously considering Methotrexate, but I am very weary of it considering the side effects as well. I hate the thought of him being on serious medication like that. Have either of your children started it yet? I will let you know how things go if we decide to put our son on it for a little while. 

alex f
alex f
December 22, 2023 - 3:26 PM

Hi Michelle, I'm in a similar position as you. My daughter recently turned 3 and her knee swelling has returned 4 months after steroid injections and we're thinking about Methotrexate. Would be interested to hear your experience if she started it. <3

Lauren B
Lauren B
July 4, 2023 - 6:18 PM

Hi all! Just joined here but my 6.5 year old daughter has had SJIA for about 2 years now. I'm looking forward to connecting with other SJIA families!

Monique F
Monique F
May 19, 2023 - 10:20 PM

What natural remedies have you tried for your child as far as treating JIA?

Tiffany C
Tiffany C
February 15, 2023 - 10:54 PM

Hello!!

Tonights February 15th's link for zoom meeting is https://arthritisfoundation.zoom.us/meeting/register/tZArcuyppz8jGtPIreDIZ2BGNXfA8brv92nT

We will meet promptly at 8pm ET/ 7pm CT/ 6pm MT/ 4pm PT to discuss pain relief strategies with our kids.

Can't wait to see you there!!

Tiffany C
Tiffany C
February 15, 2023 - 11:01 PM

5pm PT for February 15th

Robin M
Robin M
February 1, 2023 - 1:54 PM

Hello! My name is Robin and my 7 year old daughter has systemic JIA. She was diagnosed when she was 3 and was on medication for about a year, then went into remission. She recently had a severe flare so she's back on medication and we're thinking more long-term now as we've seen the disease return. Looking forward to connecting with other families here :) 

nirmala k
nirmala k
January 9, 2023 - 6:03 PM

Hello, my 3.5 year old son was diagnosed with Extended Oligoarticular JIA about a year ago. He has been on Methotraxate and Humira since then. They have some side effects, the main one being loss of appetite and burping. I wanted to learn from other parents on a couple of topics: 

1. Have you pursued any physical therapy and have they worked?

2. Any insights on complementary treatments including change in nutrition that have worked for you. 

My son has definitely improved but he is less active than other kids his age. So trying to see what I can do to help. 

Dasha H
Dasha H
November 30, 2022 - 8:45 PM

Hey everyone! I'm the mom of an 11 year old 5th grade girl that lives with juvenile arthritis. Just looking to connect with others and to find support with all that this experience brings! I hope to connect soon!

Anjali M
Anjali M
February 6, 2023 - 5:11 AM

Hi we have a 5th grader daughter with arthritis too who may be going thru similar stuff as yours. Hope to connect.

Robin M
Robin M
February 1, 2023 - 1:52 PM

Hi Dasha,

My 7 year old daughter has JIA and we're interested in connecting with other families as well. 

Kathleen  S
Kathleen S
November 9, 2022 - 12:56 PM

Hello, 

Im looking forward to this group as I navigate finding the best team of doctors for treatment of JIA for my 5 year old. 

Robin M
Robin M
February 1, 2023 - 1:51 PM

Hi Kathleen,

 

My 7 year old daughter has sJIA. Sending you lots of strength and support on this journey. 

Dasha H
Dasha H
November 30, 2022 - 8:45 PM

Hi Kathleen!

Erin w
Erin w
November 9, 2022 - 12:46 AM

Hi,

I am registered for the presentation today, but have not received a zoom link, just a confirmation email.  I have checked my inbox and spam email. Is there another way to get the link? This happened to another webinar I tried to attend, I just don't want to be missing a step. 

Thanks,

Erin