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Northeast - JA Parent Connect Group

Northeast, Florida
33 Members

Live Yes! Connect Groups for JA Parents provide local connections, education and empowerment for parents and caregivers with children living with rheumatic disease. JA Parents come together for professional and volunteer-led sessions on a variety of topics and group activities as it relates to raising a child with arthritis.

Participants gain skills to advocate for their child, help their child develop self-management skills and discover strategies for daily living. These groups are part of an expanding range of Arthritis Foundation resources that provides personalized help & support to parents who have a child/teen with a childhood rheumatic disease.
 

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Members [33]

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Connect Groups - Northeast JA

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Demetria E
Demetria E
October 21, 2021 - 10:58 PM

Good evening,

I need guidance for my daughter. She was diagnosed at 2 and has been on celebrex, enbrel, methotrexate, humira and had a leg injection as well as been on steroids for 30 straight days. The inflammation continues to spread and have reached her neck and cervical spine and her knee swelling has never went down. The doctor have suggested IV infusion with a drug called Simponi Aria. Does anyone have any exprience with this? Side effects or issues even benefits would be helpful.

Jennifer R
Jennifer R
April 17, 2020 - 6:32 PM

Checking in to see how everyone is handling the Covid-Quarentine. How has life changed with the change in your children's routines? Many of us now doing school and work at home is a big change. For our household it can be a like a juggling act. How are you all coping with the stay safe at home taking place? Would you like to share ideas how your family is passing time and still getting necessary, everyday activities done? I know my daughter is loving the adjustment in her schedule because it is not required to get up and moving right away. She has more flexibility in time and can go at more of a comfortable pace while doing courses online. She does miss seeing friend but they are seeing each other through online conferences and catching up more than they have in person. We are still having to go to the doctors offices for some appointments and therapies. Being home has greatly adjusted what I do and with my husband working from home he has had a different exposure to what happens at home during our day. We were a family continually on the go now being home has been a big adjustment but I believe a necessary pause. What has changed for you these days?

Demetria E
Demetria E
July 26, 2021 - 4:06 PM

Good morning,

I just wanted to introduce myself to group. My youngest who is 2 was recently diagnosed and it has been one battle after another. Just looking to meet other families.

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The Arthritis Foundation is focused on finding a cure and championing the fight against arthritis with life-changing information, advocacy, science and community. We can only achieve these goals with your help. Strong, outspoken and engaged volunteers will help us conquer arthritis. By getting involved, you become a leader in our organization and help make a difference in the lives of millions. Join us and become a Champion of Yes.

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Your shared experiences will help:

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Now is the time to make your voice count, for yourself and the entire arthritis community. 

Currently this program is for the adult arthritis community.  Since the needs of the juvenile arthritis (JA) community are unique, we are currently working with experts to develop a customized experience for JA families. 

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As a partner, you will help the Arthritis Foundation provide life-changing resources, science, advocacy and community connections for people with arthritis, the nations leading cause of disability. Join us today and help lead the way as a Champion of Yes.

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