Welcome to the
Northeast - JA Parent Connect Group
Northeast, Florida
33 Members
Live Yes! Connect Groups for JA Parents provide local connections, education and empowerment for parents and caregivers with children living with rheumatic disease. JA Parents come together for professional and volunteer-led sessions on a variety of topics and group activities as it relates to raising a child with arthritis.
Participants gain skills to advocate for their child, help their child develop self-management skills and discover strategies for daily living. These groups are part of an expanding range of Arthritis Foundation resources that provides personalized help & support to parents who have a child/teen with a childhood rheumatic disease.
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Arthritis Foundation Event
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Members [33]
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Connect Groups - Northeast JA
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Good evening,
I need guidance for my daughter. She was diagnosed at 2 and has been on celebrex, enbrel, methotrexate, humira and had a leg injection as well as been on steroids for 30 straight days. The inflammation continues to spread and have reached her neck and cervical spine and her knee swelling has never went down. The doctor have suggested IV infusion with a drug called Simponi Aria. Does anyone have any exprience with this? Side effects or issues even benefits would be helpful.
Checking in to see how everyone is handling the Covid-Quarentine. How has life changed with the change in your children's routines? Many of us now doing school and work at home is a big change. For our household it can be a like a juggling act. How are you all coping with the stay safe at home taking place? Would you like to share ideas how your family is passing time and still getting necessary, everyday activities done? I know my daughter is loving the adjustment in her schedule because it is not required to get up and moving right away. She has more flexibility in time and can go at more of a comfortable pace while doing courses online. She does miss seeing friend but they are seeing each other through online conferences and catching up more than they have in person. We are still having to go to the doctors offices for some appointments and therapies. Being home has greatly adjusted what I do and with my husband working from home he has had a different exposure to what happens at home during our day. We were a family continually on the go now being home has been a big adjustment but I believe a necessary pause. What has changed for you these days?
Good morning,
I just wanted to introduce myself to group. My youngest who is 2 was recently diagnosed and it has been one battle after another. Just looking to meet other families.