Osteoarthritis
685 Members
This online group serves the members of our arthritis community who are living with Osteoarthritis from across the country. We invite those who are looking for support, education, robust programming, expert speakers, and connection to join us and meet others who understand.
Live Yes! Connect Groups offer connections, education, and empowerment. Adults living with arthritis from across the country come together online for professional- and volunteer-led sessions on topics, as well as fun group activities.
We offer a place of understanding and encouragement for both people living with arthritis and their loved ones. Group participants become self-advocates, develop self-management skills, and learn how to not just survive life with arthritis
Upcoming Events
-
Friday, July 18th, 20253:00 PM ET1h 30m
-
Virtual Event
- 122 people attending
Rescheduled from April
Join us on July 18,2025 at 3pm ET as we will have Zenobia Tayeb, MD, MPH, MEd, Dip ABLM- a Cleveland Clinic - Staff Physician with the Center for Integrative and Lifestyle Medicine in the Department of Wellness and Preventive Medicine
discussing "Managing osteoarthritis and chronic pain with integrative and lifestyle medicine" presentation followed by Q and A ,
You DO NOT want to miss this presentation and there will be a Q & A after presentation.
You must register to attend.
- Event List
-
Friday, July 18th, 20253:00 PM ET1h 30m
-
Virtual Event
- 122 people attending
Rescheduled from April
Join us on July 18,2025 at 3pm ET as we will have Zenobia Tayeb, MD, MPH, MEd, Dip ABLM- a Cleveland Clinic - Staff Physician with the Center for Integrative and Lifestyle Medicine in the Department of Wellness and Preventive Medicine
discussing "Managing osteoarthritis and chronic pain with integrative and lifestyle medicine" presentation followed by Q and A ,
You DO NOT want to miss this presentation and there will be a Q & A after presentation.
You must register to attend.
Facilitators [2]
Members [685]
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Comments [85]
Can we discuss arthitic pain in legs and/or feet sleeping at night? Best way to deal with it.
Hi Bunny: I rarely have leg pain and or feet pain at night, but when I do, I usually use a heating pad. Perhaps the pain is from being on your feet during the day, and this does not mean all day long. Just normal day to day activities. You should check with your doctor, but perhaps a visit to a podiatrist may be in order? Again check with your doctor on this. I've had plantar faciitis in the past (so, so painful) and getting orthotics made for my shoes helped. There could be underlying issues as well, so check with your doctor.
Just saying hello!
I have had arthritis issues for 4-5 years and now it is getting worse. I just joined the group, was pretty down today. I am glad I joined because just by reading through the posts I feel supported. I hate to say this, but in the past 10 months, my doctors have not offered any remedies except I did have a cortizone injection (REALLY helped for a short while).
The pain became intolerable last August when my mother was dying and after her death, doing all the physical work cleaning out her house. My family didn't seem to understand, just wanted me to help with everything. I had to use my mother's cane. I'm not even that old. Anyways, I know that acceptance is the first step.
Thanks everyone
Hi Tanya: Sorry for the late response, as I was on vacation when you posted this. Acceptance is a good first start when dealing with arthritis. I also think when we are highly stressed out, such as a death in the family, your syptoms can worsen or flare. My family does not support me either mentally or physically with my arthritis. I also have rheumatoid arthritis, so kind of a double whammy. I know exactly what you are going through when it comes to family and even some friends. In the past I tried to tell them about my disease, but it fell on deaf ears. So that is why joining a support group is so important. We get it! We understand what you are going through.
Does anyone have experience with Stem Cell Injections or PRP injections for the hip?
Hello,
I do not have it with the hip: but I have it with my knees and it was the best thing I feel I did .
Although either are usually covered by insurance I could not personally at the time afford the 9-10k price of stem cell injections.
I did have PRP injections in both knees guided by ultra sound which back in 2016 cost me about 1k per knee. After the initial swelling subsided and had PT for about 2 weeks and started noticing improvement.
I was being treated for osteoarthritis and osteonecrosis in my right knee and OA in in left.
What ever you decide DO YOUR HOMEWORK on Provider, Clinic and what type of stem cell is used,as there is a difference. See list below
TIPS
1. Clinic and Provider:
Look for clinics with a good reputation and experienced providers specializing in stem cell therapy. Ask to talk to some previous clinents
Ensure the provider has the necessary qualifications and certifications for performing stem cell injections.
Verify that the clinic is properly licensed and accredited by relevant regulatory bodies.
2. Procedure Details:
Understand the source of the stem cells (e.g., bone marrow, umbilical cord, or other sources) and how they are harvested and processed.
Ask about the specific steps involved in the procedure, including the injection site, technique, and any pre- or post-procedure instructions.
Discuss realistic expectations for the procedure, including potential benefits, risks, and how long it might take to see results.
3. Post-Procedure Care:
Follow your provider's specific instructions for post-procedure care, including rest, activity modifications, pain management, and follow-up appointments.
Be aware of potential side effects such as pain, inflammation, bruising, or allergic reactions, and know when to contact your provider.
Know the signs and symptoms that warrant immediate medical attention, such as fever, infection, or worsening pain.
4. Safety and Legitimacy:
Understand the scientific basis for stem cell therapy and its effectiveness for your specific condition.
Be cautious of clinics making overly optimistic claims or promising miracle cures. Example curing a collapsed hip.
Do not seek treatment from unlicensed or unqualified individuals or clinics.
5. Financial Aspects:
I was diagnosed with CMC thumb arthritis last year. I was given a set of push splints to wear but in the summer months they are very, very uncomfortable in the warmer weather doing gardening etc. I also quilt and the velcro area seems to always catch on my fabric. So, for those of you with CMC - do you wear a splint and what seems to work for you?
Thanks
Good morning
for the men in the group.
Someone may reach out to you to see if you're willing to share your osteoarthritis story.
Thank You
Deb Andio
Mark Your Calendar for Tuesday, May 13, 2025 | 6 pm ET
Hi Connect Group Members,
Its Deb Andio
I hope we are all having an amazing day in your part of the country
I am reaching out to share a unique invitation open only to Connect Group Members. The Arthritis Foundation is hosting a webinar on Tuesday, May 13, 2025 at 6 pm ET entitled, "Arthritis Foundation & American College of Rheumatology Research and Treatment Showcase." This exclusive webinar is only open to Connect Group Members and aims to provide patients with accessible and impactful insights from the 2024 American College of Rheumatology Convergence conference, focusing on key research and information that can enhance patient-provider relationships and improve patient care. Register today!
Wishing you all a pain free day
Register: https://joinus.arthritis.org/event/acrshowcase/summary
Thanks Deb. I registered.
Patrice
I am looking for supplement recommendations, especially curcumin, any others that have helped
thank you
Hi Tammy: I am not familiar with curcumin. Deb gave you some great advice. I do take some supplements, but like Deb stated, check with your doctor first. You can also do a search for supplements on the arlthritis foundation home page.
Always check with your doctor first, Curcumin supplements should be avoided by individuals who are pregnant, breastfeeding, have liver or bile duct problems, are undergoing chemotherapy, or have recently had surgery. Additionally, those with bleeding disorders, diabetes, certain hormone-sensitive conditions, or who are taking blood thinners should consult a doctor before taking curcumin.
Subject: Event Cancellation Notice 04/17/25 4pm ET
Dear Everyone,
I hope this message finds you well. I regret to inform you that today’s event with
Dr. Zenobia Tayeb has been canceled due to an unforeseen emergency on her end. We understand that living with arthritis often
comes with unexpected changes, and we appreciate your understanding in this situation.
Ignore any email reminders for todays event - as event had to be cancelled .
Dr. Tayeb is committed to rescheduling as soon as possible, and I will keep you updated with the new date
and time once it's confirmed.
I apologize for any inconvenience this may cause, and I appreciate your flexibility. In the meantime,
I wish you all a pain-free day!
An email was sent today by me to the group at 05:30am ET
Deb Andio Facilitator
Hi
I just joined this group because I was just diagnosed with this condition. I went from no symptoms 4 months ago to now feeling pain in my right groin area. The pain is not severe but it's pretty much always there. Is this normal progression and does it the pain get worse with time? Any experience you can share would be appreciated.
thank you
Hi and WELCOME !!
Sorry to hear your in constant discomfort .Speak to your doctor.
Constant discomfort, or chronic pain, is a common experience for individuals with osteoarthritis (OA), especially in advanced stages of the disease.
While early OA might present as intermittent pain related to activity, as the condition progresses, pain becomes more persistent and may be present even at rest.
This constant discomfort can significantly impact daily life, affecting mobility, sleep, and overall quality of life.
PRP and StemCell injections
I can understand what you're going through. I need to have bilateral hip surgery and because I am obese no one is willing to do surgery and it's ruining my life. This pain snuck up on me and hit me quick. It's becoming so bothersome I can't sleep or walk properly. Here's to hoping someone can help me find a doctor who will help me.
Pain in or around the hip joint and groin area is the most common symptom of hip osteoarthritis. Additionally, pain in the groin or thigh that moves into the buttocks or knee is another symptom. Pain may develop over a gradual period initially and can worsen over time Talk to your Doctor and check out https://www.arthritis.org/health-wellness/about-arthritis/understanding-arthritis/hip-osteoarthritis
Hi Ron:
Pain is one of those things that can vary from patient to patient, as well as disease progression. I can't really give you a firm answer to both of these, but I would recommend you discussing it with your doctor. I have had Osteoarlthritis in my left knee for 40 years. I have days where the pain is mild, and other days where it is a little more painful. And my knee does not like the winter either. I do much better with pain during the warmer months. But this is just me. Again, this too can vary from patient to patient.
There are a lot of arthicles, webinars and podcasts on pain and pain management on the Arthritis Foundation website. You can just type in pain in the search box. I think you will find a lot of valueable information, resources, and education there. And as always, this connect group is here to offer support for arthritis patients. You are not alone in your journey living with arthritis.
Patrice
Hello. I'm new here. Recently diagnosed with cervical spine osteoarthritis and am looking for others with a similar diagnosis. It's been so difficult coping with the constant pain. I had an ablation 2 weeks ago with no relief done by a pain specialist. My next step is a neurosurgeon. Any advice for this newbie is most appreciated.
I have arthritis in spine, hands, knees and feet for over 15 years some areas over 30 years but spine is 15 years it always lets us know its there thats for sure.
We cannot give specific advice
Always talk to your doctor but good exercises with Dr's approvalare focus on low-impact exercises like walking, swimming,
or cycling, and incorporate strengthening and stretching routines, while avoiding activities that put too much stress on your spine
https://www.arthritis.org/health-wellness/about-arthritis/understanding-arthritis/back-oa
Here are 7 practical ways to cope with osteoarthritis pain:As long as your doctor says its ok- NEVER do anything new whether its exercise or diet without your doctors ok.
Stay Active: Engage in low-impact exercises like swimming, walking, or yoga to keep joints flexible and muscles strong.
Manage Weight: Maintaining a healthy weight reduces pressure on weight-bearing joints like the knees and hips.
Use Heat or Cold Therapy: Heat can ease stiffness, while cold packs help reduce swelling and numb pain.
Practice Good Posture: Proper alignment can minimize unnecessary joint strain.
Incorporate Joint Support Tools: Use braces, supportive shoes, or cane, walker to reduce stress on painful joints.
Focus on Nutrition: Anti-inflammatory foods, like fatty fish, leafy greens, and turmeric, may help reduce symptoms.
Pace Yourself: Balance activity with rest to avoid overexertion and give your joints time to recover.
Links
Food thats causes inflammation https://www.arthritis.org/health-wellness/healthy-living/nutrition/foods-to-limit/8-food-ingredients-that-can-cause-inflammation
Anti-Inflammatory Diet https://www.arthritis.org/health-wellness/healthy-living/nutrition/anti-inflammatory/the-ultimate-arthritis-diet
Treatments for Osteoarthritis https://www.arthritis.org/diseases/more-about/guidelines-for-osteoarthritis-treatments
Welcome, everyone, to the Osteoarthritis Connect Group! We're so glad to have you here as part of this community
where we can support, learn, and grow together.
Please stay tuned, as more events will be scheduled within the next week.
We're excited about the opportunities ahead and look forward to seeing you at our upcoming gatherings.
Warm regards, Deb Andio
Hello,
I'm new here and looking for support from others dealing with osteoarthritis. It has only become a big problem for me over the last couple of months. Most of mine is focused on my legs, and PT only made it worse. I try to keep a good attitude, but, wow, it's hard some days!
Arthritis pain can be stressful and challenging, especially on tough days. Please know that you're not alone—we're here to support you
Hello,
I'm new here and looking for support from others dealing with osteoarthritis. It has only become a big problem for me over the last couple of months. Most of mine is focused on my legs, and PT only made it worse. I try to keep a good attitude, but, wow, it's hard some days!
Hello,
I'm new here and looking for support from others dealing with osteoarthritis. It has only become a big problem for me over the last couple of months. Most of mine is focused on my legs, and PT only made it worse. I try to keep a good attitude, but, wow, it's hard some days!
Hi
Welcome
I'm looking for a group of people who understands the struggles of osteoarthritis and any suggestions on how to cope.
I'm new
Hi Jan how are you ? Stay tuned we have some connect groups and speakers coming
Take Care
Deb Andio
Does anybody in the Cincinnati or Dayton, Ohio are know of any organizations or groups that would donate a lift chair?
Goodwill stores sometimes have gently used medical equipment, including lift chairs, available for purchase at a low cost , also check the other social service agencies in your area.
Hi, All
My name is Kelly, and I am just joining this group. Honestly, I'm not sure which group to join. I am 54 and was originally diagnosed with psoriatic arthritis in 1990. Then a few years later, I was diagnosed with fibromyalgia. Then around 2017, I was diagnosed with osteoarthritis. I'm not sure which one I have, or if I have a combination of all three. Can anyone relate to this? I started showing signs of psoriasis when I was eight years old. In 1990, I came down with rheumetoid symtoms--sausage fingers and toes--and was diagnosed with psoriatic arthritis. After one cortizone shot, those symptoms went away. But a few years later, I was sore all over and had a lot of fatigue. I failed that fibromyalgia pressure point test. I seemed to have knee trouble in my early 20s and always assumed it was fibromyalgia. But in 2017 I had MRIs on both knees and discovered I am close to bone-on-bone. Now, I'm looking at knee-replacement surgery for both knees within the next couple of years. I am on Otezla for my psoriasis, but it has not stopped the progression of my knees. I take meloxicam for my knee pain. Knock on wood, but I am not experiencing arthritis (yet) elsewhere in my body--only my knees.
Does the above story resonate with anyone? It would sure be nice to know what I have. My doctor thinks I had active psoriatic arthritis when I was younger that activated osteoarthritis in my knees. But does anyone have any other ideas?
Cheers and thanks!
-Kelly
You can join one or all , I am sorry you have so much pain.
But here you are not limited to how many groups you can join.
I am a female in my early 50's and was a runner all my life. I was just diagnosed with having osteoarthritis in my left knee about two weeks ago. I just had a gel shot. I'm not sure it will help. I would love to know anybody else's experience with a gel shot. I would also love to know anybody else who continues to find a way to run with having osteoarthritis in the knee. Thank you.
I have not had gel shots, I have had success with PRP injections (usually not covered by most insurance)
I am not a runner.
I thought there was a member group online meeting today January 28th. Of course now I cannot find the link to it and quite often I cannot find it listed under events. It makes me feel a little crazy. Can someone tell me if it is happening today and when. We are on the west coast, PST,, but I can convert whatever time you let me know.
I thought there was a member group online meeting today January 28th. Of course now I cannot find the link to it and quite often I cannot find it listed under events. It makes me feel a little crazy. Can someone tell me if it is happening today and when. We are on the west coast, PST,, but I can convert whatever time you let me know.
I thought there was a member group online meeting today January 28th. Of course now I cannot find the link to it and quite often I cannot find it listed under events. It makes me feel a little crazy. Can someone tell me if it is happening today and when. We are on the west coast, PST,, but I can convert whatever time you let me know.
Good Morning. I just stumbled upon the group while researching pain relief for OA. I was diagnosed with severe OA after being in pain for 10 months. A pain specialist took the time to send me for a MRI and xray. I am bone on bone and told I needed a hip replacement but only after I lose 50 lbs. I just wanted to be amongst others who can relate and understand my pain. I use a cane for support when I walk.
Any recommendations on pain relief? I am taking natural vitamins with MCM and collagen for joint health.
I just want to walk and feel normal, no limp.
Sorry for ranting.
Hi check this out https://www.arthritis.org/pain
Is peanut butter inflammatory?
Hi Janet
Anti-Inflammatory Properties:I am not a Dr or Nutritionist, but in past Connect Groups with Dietitians they said that
Peanut butter can have both anti-inflammatory and pro-inflammatory effects, depending on its ingredients and how it's consumed. Here's a breakdown:
-
-
Pro-Inflammatory Properties:Healthy Fats: Peanut butter contains monounsaturated and polyunsaturated fats, which can help reduce inflammation and improve heart health.
Nutrients: It's rich in vitamins and minerals like magnesium, which has anti-inflammatory properties.
Added Ingredients: Some peanut butters contain added sugars, unhealthy oils, and salt, which can contribute to inflammation.
Omega-6 Fatty Acids: Peanuts are high in omega-6 fatty acids, which can promote inflammation if consumed in excess without a balance of omega-3 fatty acids.
To enjoy the benefits and minimize the drawbacks, opt for natural peanut butter with minimal added ingredients and consume it in moderation.
Also always talkto your Doctor re:dietary needs
Here is a recipe we had from a previous connect group
Making your own sugar-free and oil-free peanut butter is simple and delicious! Here's a quick recipe:
Ingredients:-
-
Instructions:2 cups of unsalted, dry-roasted peanuts
A pinch of salt (optional)
Roast the Peanuts: If your peanuts aren't already roasted, spread them on a baking sheet and roast them in the oven at 350°F (175°C) for about 10 minutes. This helps to bring out the natural oils and flavor.
Blend: Place the roasted peanuts in a food processor. Blend on high speed for about 5-10 minutes. You'll need to stop occasionally to scrape down the sides of the bowl. The peanuts will go through several stages: from crumbs to a thick paste, and finally to a smooth, creamy butter.
Add Salt: If you like, add a pinch of salt to taste and blend again for a few seconds.
Store: Transfer the peanut butter to an airtight container and store it in the refrigerator. It should last for several weeks.
Enjoy your homemade peanut butter on toast, in smoothies, or straight from the jar!
Soaking peanuts before making peanut butter is optional, but it can offer some benefits:
Benefits of Soaking:-
-
-
How to Soak Peanuts:Easier Blending: Soaked peanuts can be softer, making them easier to blend into a smooth butter.
Reduced Phytic Acid: Soaking can help reduce phytic acid, which can interfere with nutrient absorption.
Enhanced Flavor: Some people find that soaking enhances the natural flavor of the peanuts.
Rinse: Rinse the peanuts thoroughly under cold water.
Soak: Place the peanuts in a bowl and cover them with water. Let them soak for 6-8 hours or overnight.
Drain and Rinse: After soaking, drain the water and rinse the peanuts again.
Dry: Pat the peanuts dry with a towel or let them air dry before roasting or blending.
If you prefer not to soak them, that's perfectly fine too. It's all about personal preference and what works best for you.
Hope that helps
Deb Andio
Hi Janet
Anti-Inflammatory Properties:I am not a Dr or Nutritionist, but in past Connect Groups with Dietitians they said that
Peanut butter can have both anti-inflammatory and pro-inflammatory effects, depending on its ingredients and how it's consumed. Here's a breakdown:
-
-
Pro-Inflammatory Properties:Healthy Fats: Peanut butter contains monounsaturated and polyunsaturated fats, which can help reduce inflammation and improve heart health.
Nutrients: It's rich in vitamins and minerals like magnesium, which has anti-inflammatory properties.
Added Ingredients: Some peanut butters contain added sugars, unhealthy oils, and salt, which can contribute to inflammation.
Omega-6 Fatty Acids: Peanuts are high in omega-6 fatty acids, which can promote inflammation if consumed in excess without a balance of omega-3 fatty acids.
To enjoy the benefits and minimize the drawbacks, opt for natural peanut butter with minimal added ingredients and consume it in moderation.
Also always talkto your Doctor re:dietary needs
Here is a recipe we had from a previous connect group
Making your own sugar-free and oil-free peanut butter is simple and delicious! Here's a quick recipe:
Ingredients:-
-
Instructions:2 cups of unsalted, dry-roasted peanuts
A pinch of salt (optional)
Roast the Peanuts: If your peanuts aren't already roasted, spread them on a baking sheet and roast them in the oven at 350°F (175°C) for about 10 minutes. This helps to bring out the natural oils and flavor.
Blend: Place the roasted peanuts in a food processor. Blend on high speed for about 5-10 minutes. You'll need to stop occasionally to scrape down the sides of the bowl. The peanuts will go through several stages: from crumbs to a thick paste, and finally to a smooth, creamy butter.
Add Salt: If you like, add a pinch of salt to taste and blend again for a few seconds.
Store: Transfer the peanut butter to an airtight container and store it in the refrigerator. It should last for several weeks.
Enjoy your homemade peanut butter on toast, in smoothies, or straight from the jar!
Soaking peanuts before making peanut butter is optional, but it can offer some benefits:
Benefits of Soaking:-
-
-
How to Soak Peanuts:Easier Blending: Soaked peanuts can be softer, making them easier to blend into a smooth butter.
Reduced Phytic Acid: Soaking can help reduce phytic acid, which can interfere with nutrient absorption.
Enhanced Flavor: Some people find that soaking enhances the natural flavor of the peanuts.
Rinse: Rinse the peanuts thoroughly under cold water.
Soak: Place the peanuts in a bowl and cover them with water. Let them soak for 6-8 hours or overnight.
Drain and Rinse: After soaking, drain the water and rinse the peanuts again.
Dry: Pat the peanuts dry with a towel or let them air dry before roasting or blending.
If you prefer not to soak them, that's perfectly fine too. It's all about personal preference and what works best for you.
Hope that helps
Deb Andio
Hi Janet
Anti-Inflammatory Properties:I am not a Dr or Nutritionist, but in past Connect Groups with Dietitians they said that
Peanut butter can have both anti-inflammatory and pro-inflammatory effects, depending on its ingredients and how it's consumed. Here's a breakdown:
-
-
Pro-Inflammatory Properties:Healthy Fats: Peanut butter contains monounsaturated and polyunsaturated fats, which can help reduce inflammation and improve heart health.
Nutrients: It's rich in vitamins and minerals like magnesium, which has anti-inflammatory properties.
Added Ingredients: Some peanut butters contain added sugars, unhealthy oils, and salt, which can contribute to inflammation.
Omega-6 Fatty Acids: Peanuts are high in omega-6 fatty acids, which can promote inflammation if consumed in excess without a balance of omega-3 fatty acids.
To enjoy the benefits and minimize the drawbacks, opt for natural peanut butter with minimal added ingredients and consume it in moderation.
Also always talkto your Doctor re:dietary needs
Here is a recipe we had from a previous connect group
Making your own sugar-free and oil-free peanut butter is simple and delicious! Here's a quick recipe:
Ingredients:-
-
Instructions:2 cups of unsalted, dry-roasted peanuts
A pinch of salt (optional)
Roast the Peanuts: If your peanuts aren't already roasted, spread them on a baking sheet and roast them in the oven at 350°F (175°C) for about 10 minutes. This helps to bring out the natural oils and flavor.
Blend: Place the roasted peanuts in a food processor. Blend on high speed for about 5-10 minutes. You'll need to stop occasionally to scrape down the sides of the bowl. The peanuts will go through several stages: from crumbs to a thick paste, and finally to a smooth, creamy butter.
Add Salt: If you like, add a pinch of salt to taste and blend again for a few seconds.
Store: Transfer the peanut butter to an airtight container and store it in the refrigerator. It should last for several weeks.
Enjoy your homemade peanut butter on toast, in smoothies, or straight from the jar!
Soaking peanuts before making peanut butter is optional, but it can offer some benefits:
Benefits of Soaking:-
-
-
How to Soak Peanuts:Easier Blending: Soaked peanuts can be softer, making them easier to blend into a smooth butter.
Reduced Phytic Acid: Soaking can help reduce phytic acid, which can interfere with nutrient absorption.
Enhanced Flavor: Some people find that soaking enhances the natural flavor of the peanuts.
Rinse: Rinse the peanuts thoroughly under cold water.
Soak: Place the peanuts in a bowl and cover them with water. Let them soak for 6-8 hours or overnight.
Drain and Rinse: After soaking, drain the water and rinse the peanuts again.
Dry: Pat the peanuts dry with a towel or let them air dry before roasting or blending.
If you prefer not to soak them, that's perfectly fine too. It's all about personal preference and what works best for you.
Hope that helps
Deb Andio
I have had osteoarthritis since my early 30s and am currently 73 years old. The disease has deformed and crippled my joints for the past 40 years. I made a list of all the fusions and joint replacements I've had in my life due to OA: two fusions and five arthroplasties so far. Sheesh! I can't imagine continuing these repairs for much longer. Do I even want to live into my 80s and 90s?
I take 75mg of diclofenac daily for pain and 60mg of duloxetine for anxiety and pain. Additionally I take 40mg of hydrochloride for inflammation to address rheumatoid arthritis symptoms. NSAIDs haven't been strong enough. Gabapentin and similars also failed to address the pain.
Does anyone have suggestions for easing chronic pain?
I’m so sorry to hear about your struggles with osteoarthritis. It sounds like you’ve been through an incredibly tough journey. Your resilience and strength in facing these challenges are truly inspiring. It’s completely understandable to feel overwhelmed by the prospect of continuing these treatments.
Have you had a chance to discuss your feelings and concerns with your healthcare provider? They might be able to offer some options or support that could make things a bit easier for you. Also, connecting with others who have similar experiences might provide some comfort and new perspectives.
Remember, it’s okay to feel uncertain about the future. Taking things one day at a time and focusing on what brings you joy and comfort can make a big difference. You’ve shown remarkable courage so far, and I believe you have the strength to navigate whatever comes next.
And remember you have an entire arthritis community supporting you
Hi I would suggest you ask your PCP to assist you as they know you and can be of better assistance. What may work for me may not work for you, so its best to talk to your doctor
Hi, I'm not even sure where to start. Today is a bad pain day, and I've fallen down a hole of googling medical terms from my lab reports.
My back story is long and boring, but the key points are I have a family history of Osteoarthritis, Rheumatoid Arthritis (and Juvanile Arthritis), Degenerative Disc Disease, and Fibromyalgia. As of the last year, I have been told I have 3 out of the 4 (my RH Factor was negative). Just to make things more interesting, I'm on year 35 of Major Depressive Disorder and a whole host of complicating health problems.
I feel like Wendy Whiner with all my complaints. I've had to give up on hobbies and am sleep deprived due to pain. My son, who is a freshman in college, is already making plans to take care of me in my 'old age' in the near future.
I'm in a cycle of fatigue, depression and pain. One causing the next amplifed by another. I just don't know how to get out of the loop.
I’m really sorry to hear about all the health challenges you’re facing. It sounds like you’ve been through so much, and it’s completely understandable to feel the way you do. You’re not a “Wendy Whiner” at all—your feelings and experiences are valid, and it’s important to acknowledge them.
It’s great that your son is thinking about your future care, but it’s also important to focus on what can be done to improve your quality of life now. Have you had a chance to talk to your healthcare providers about your pain and sleep issues? There might be some treatments or strategies that could help.
Also, connecting with others who have similar experiences might provide some comfort and new perspectives. Sometimes, just knowing you’re not alone can make a big difference.
Remember, it’s okay to ask for help and to take things one day at a time. You’ve shown remarkable strength in dealing with everything so far, and I believe you have the resilience to navigate through all of this.
Will your doctor gupive you pain meds?
Hello! Would love to talk to someone with OA in their knees who is still running? I am a runner and have been side-lined due to a recent OA diagnosis, but would love to talk to someone who has continued to run! Thank you.
Hi Jessica, I'd be open to talking to you! I found running about 2.5 years ago and I have knee OA. What's the best way for us to connect? Let me know!
Hello! I'm Ron Porter from Wichita Kansas. I just joined today 12/04/2024. Have had ostearthiritis for a few years now. I'm 65 and don't get out much anymore. But I do enjoy being outside and going to the park!
Hello Ron! Welcome to the group. It’s great to have you here. I’m sorry to hear about your osteoarthritis, but it’s wonderful that you still enjoy being outside and going to the park. Nature can be such a great healer.
Feel free to share more about your experiences or ask any questions. We’re all here to support each other.
Hello all,
I am new to this group and welcome any suggested therapies that you have found helpful. I have arthritis in both knees- moderate, both hips (recently had my right hip replaced), and in my wrists and fingers. I have had carpal tunnel surgery in my right hand 5 years ago. My right fingers get very swollen and curled. I am losing strength in both hands, but more sever in my dominant right hand. I have tried many medications for pain, but they all seem minimal and temporary. I exercise daily and usually use hand and knee compression sleeves. Sometimes CBD cream helps.
The humidity, cold, and barometric pressure changes seem to worsen pain. I live in Michigan and I am looking for a winter travel reprieve. I am not crazy about Fla., the Phoenix area, or Nevada, but i may have to bite the bullet. Any climate recommendations that people have found helpful? Or therapies? I do get some massages, and find saunas and hottubs helpful. I am going to try red light therapy.
Thanks!
Sheila
Hello and welcome to the group! Im not a doctor just an advocate so below are things to think about and talk to your PCP about .It sounds like you’ve been through a lot with your arthritis and other health challenges. It’s great that you’re proactive about seeking out therapies and treatments that might help.
For climate recommendations, I understand your pain- I am originally from NE Ohio and we just moved to Fl 16 months ago, if you can take summer heat its nice my pain personally is about 50 percent less that what it was in ohio. If you cannot take the extreme heat and humid climates you might want to consider places with mild winters and lower humidity, such as parts of California Arizona or the Carolinas. These areas can offer a more comfortable environment during the colder months.
As for therapies, it’s wonderful that you’re already using compression sleeves and CBD cream. Some other options you might explore include:
Physical Therapy: Working with a physical therapist can help improve strength and flexibility.
Occupational Therapy: This can assist with daily activities and finding ways to reduce strain on your joints.
Aquatic Therapy: Exercising in water can be gentler on your joints while still providing a good workout.
Acupuncture: Some people find relief from pain and inflammation through acupuncture.
Diet and Supplements: Anti-inflammatory diets and supplements like omega-3 fatty acids might help reduce symptoms.
It’s also great to hear that you find massages, saunas, and hot tubs helpful. Red light therapy is another promising option that many people have found beneficial.
I use red light therapy and enjoy it.
I hope you find some of these suggestions helpful. Feel free to share more about your experiences or ask any questions. We’re all here to support each other.
Please attend our groups when you can.
Hi Sheila,
I'm in San Diego, and find the weather rather tolerable on my hands and back. I am no where near as far as along with my OA as you describe though I have been living it with it for several years. My mom, also living here, has had 4 joints replaced and quite a bit more trouble with her OA and also finds our weather suitable. I find compression and heat the most helpful.
Hi there!
I was diagnosed with osteoarthritis in my CMC joints last year. I always thought that arthritis would come on with time, but this pain started all at once and is severe. I lost my job last spring due to this condition and I'm not able to take care of my home properly so I'm extremely depressed. I also have osteo/degenerative disc disease in my spine which causes a lot of pain.
NSAIDs don't touch this CMC pain. Tiger balm helps for a short period, no other topicals that I've found. Injections have not been successful at relieving any pain either.
I am 42 years old and now only have use of one hand. The hand surgeon told me he doesn't like to do surgery for this for anyone under about age 60.
What else can I do? Do I need to prepare myself for severe hand pain from here on out? It's been this way for approximately 18 months. I'm in so much pain between that and my spine that I feel worthless, like I can't do anything. The pain is sometimes overwhelming. Any advice would be treasured. Thank you. ❤️
Ryanne
Hello Ann,
Thank you for sharing your experience with us. It’s interesting to hear about your treatment with low-dose radiation for osteoarthritis in your right foot. How has the treatment been working for you so far? I hope it’s providing some relief.
Looking forward to hearing more about your journey and any insights you might have.I sent you an email
I’m so sorry to hear about the severe pain and challenges you’re facing. It’s completely understandable to feel overwhelmed and depressed given everything you’re dealing with. Your feelings are valid, and it’s important to acknowledge them.
It’s great that you’re exploring different treatments, even though it sounds like finding effective relief has been difficult. Have you had a chance to discuss alternative pain management options with your healthcare provider? Sometimes, a multidisciplinary approach involving physical therapy, occupational therapy, and pain management specialists can offer new strategies.
Additionally, connecting with support groups or others who have similar experiences might provide some comfort and new perspectives. You’re not alone in this, and sharing your journey with others can sometimes make a big difference.
Remember, it’s okay to ask for help and to take things one day at a time.
Deb... this is Ann Dix. I am the person who
Reclived LOW DOSE RADIATION for Osteoarthritis of my right foot.
You may contact me at
[email protected]..
FYI ...I have been in communication with Jason in the Atlanta office?? Prior to , during and after treatment.
Definitely get another opinion, my mom had 4 joints replaced (both hips and 2 knuckles) by the time she was 50.
Also, get a psychiatrist, anti depressants are life savers and many help with pain. I like Cymbalta, myself.
hello welcome i am glad your here!! stay tuned as i will be posting our next group in next few days
I also always suggest a 2nd -3rd opinion
Deb Andio
Hello,
Is there a Connect Group in San Diego?
Thanks.
I would also like to see a group in San Diego
hello welcome i am glad your here!
there is one in orange county but not San Diego county see link https://connectgroups.arthritis.org/ go to state then California and select county closest to you
Deb Andio
Hi Everyone!
I’m Deb, one of the facilitators for this group, I want to extend a warm welcome to each of you! Thank you all for joining our
Live Yes! Connect Group for Osteoarthritis.
We’re so glad you’re here and we look forward to getting to know all of you better
All of the Arthritis Foundations Live Yes! Connect Groups are designed to provide support for adults and caregivers with all types of arthritis and rheumatic diseases, as well as for parents and caregivers of children who are navigating the challenges of arthritis. Together, we create a community where we can share experiences, gain strength from one another, empower and learn more about managing our health.
Throughout the year we’ll be hosting a variety of fun and educational events tailored to your interests and needs. To participate in an event, simply click on the title of the event you're interested in, make sure you RSVP, and you’ll receive a link to join the virtual session, along with a follow-up link for any resources discussed.
Wishing you all a pain-free day, and I hope to see many of you at our upcoming events!
Warm regards,
Deb
I just recently joined, There are no groups
I've had OA since 2012. I'm morbidly obese and in need of bilateral sup replacement and blateral knee replacement as well. I'm losing my mind because The pain is coming
Hi I am so sorry you are experiencing pain.
if there are no groups in your local area or state, you can join any group. There are some in the DC area and as an example I am from Flirida and run the Orlando East Group in Fl, you can join that one also. I do virtual and in person group meetings.
Feel free to reach out to me at [email protected]
I understand the challenges and frustration of being overweight and living with joint pain as well. It's not easy to lose weight when our joints hurt . Talk to your doctor about maybe looking into medications for weight loss.
Wishing you a wonderful day.
Deb Andio
(if you email me allow up to 48 hours for a reply. )
Hello,
I just joined this group looking for support. I was diagnosed with mild OA of both knees 5 years ago. Recently about 3 weeks ago it got worse to the point that i have difficulty getting up and sitting down. When I get up my left knee clicks and is tight. The left knee is worse than the right. I have been using a trekking pole to get up from a sitting position. My PCP wants me to do PT and take ES Tylenol upto 2 MG per day. I was also suggested to take Curcumin supplement. I did some research and found that the curcumin dosage is weight dependent. Any suggestions on the curcumin dosage and brand will be appreciated. Does it work?
Thanks,
Sangita
Hello and welcome. The best place to get the dosage is to talk to your PCP. We cannot give specific advice or dosages as everyone's health condition and needs are different.
Have a great day.
Deb
We have an informal group that is rescheduled from yesterday starting at 12pm today ET , hope to see you there
Bring your lunch and or favorite beverage.
Hope to see you all there 07/02/2024 12 pm ET
Sorry for any inconvenience
Deb Andio
Hi everyone sorry for the technical issues today, I saw all of you but could not hear any of you
I checked my mic/headset/ etc and others said they could hear me, but they could not unmute even when it said they were unmuted
and its hard to have a discussion with just me talking
so I am sorry for any issues this caused.
I will send you those that attended a email of what topics i was going to bring up to discuss.
And some extra info also
I appreciate you all very much and I will post a new day and time very soon
Thank You
Deb Andio
I just went to the Doctor and was diagnosed with O and she said to take Tylenol 500mg X2 X2 a day and it had no effect on my hand, finger and wrist pain. Any suggestions?
Ronald, is tramadol a narcotic. I see it mentioned frequently but don't know what class of drugs it is. TY
Talk to your Pcp (primary care physician)
ask them what else they may suggest.
you can ask and look into various over the counter pain rubs to apply.
have a great day.
Might ask your doctor about Tramadol. Seems to help me.
Who do others see for pain treatment for OA? My ortho can only do so much. And I do NOT like pain clinics.
Hi there are many things you can talk to you doctor about, acupressure , acupuncture ,massage therapy, and many more.
there will be an event in next few months covering this. That I am working out final details.
But until then ask your doctor.
have a nice day
I see a therqpeutic message therapist. Some of my pain comes from poor body mechanics because I compensate with other joints to avoid pain in my osteo joints. I have found the message very helpful. I also do acupuncturre. My insurance covers acupuncture but not the message.
Hi, can anyone here provide feedback on the effectiveness of using natural balneotherapy, or Sulfurous baths to alleviate osteoarthritis pain? If yes, are there any in the NY area?
Hi Joe,
Balneotherapy is an effective treatment method in various diseases and commonly used treatment among people with musculoskeletal disorders.
Warm water soaks are more than just relaxing; they're a balm for aching muscles and stiff joints, thanks to increased blood flow.
The buoyancy offers a break from gravity's constant pull, easing joint pain and soreness, while also reducing swelling and boosting circulation. Spring waters, often hailed for their purity, are actually mineral-rich, containing elements like magnesium and potassium, which are believed to have healing properties. That's why many of us add salts like those from the Dead Sea to our baths, seeking to mimic nature's own healing spring, I personaly use them and find it is relaxing. good at easing joint stiffness and is good for the skin.
Studies, such as those from the University of Birmingham, suggest that these minerals, especially magnesium, can be replenished through such baths, which is vital since many diets are deficient in this nutrient. While the full therapeutic potential of balneotherapy is still being explored, we do know that a 20-minute soak with salts and essential oils can significantly soothe your muscles and quiet your mind, offering a form of healing that's beneficial for everyone.
Sulfur water baths may improve erythrocyte deformability and aggregation parameters in patients with osteoarthritis along with reducing of neutrophile levels
Always check with your doctor before strying anything new, as often these hot springs can elevate blood pressure and some people with cardiac issues should use caution
Here are a few links I hope they help
https://www.arthritis.org/health-wellness/treatment/complementary-therapies/natural-therapies/water-therapies
https://seasalt.com/salt-101/about-bath-salt/balneotherapy
https://www.timeout.com/usa/things-to-do/best-natural-hot-springs-us
Hello, for years I had experienced a locking in my left hip area when walking and bike riding. A few years ago I was told it was a torn labrum and received a PRP shot and felt right back to normal for 2 years. Now the locking has returned more frequently and I was recently diagnosed with mild osteoarthritis in both hips, but the left is much worse It has been recommended and scheduled for me to get a hip arthroscopy surgery to fix bone spurs, clean up the ostephytes and attempt to apply BMAC to damaged cartilage. Is this the right course of action? I would really like to hear about the experience of others. Thank you!
Hi Mercedes,
Sorry to hear you are experiencing pain again.
Since I have OA in various areas but not hips I really would suggest you speak to your ortho and or get a second opinion.
I can say the collection process is minimally invasive and involves extracting marrow from the patient's hip bone using a needle and syringe. The marrow is then placed in a centrifuge and spun at high speeds to separate the cells from the fluid. The cells are concentrated into a solution that is ready for injection. I can say Bone marrow aspirate concentrate (BMAC) helps the bodys healing that can help stimulate the growth of new tissue.
Here a a couple links
https://www.arthritis.org/health-wellness/treatment/joint-surgery/preplanning/the-future-of-joint-repair
https://www.americanhipinstitute.com/blog/bmac-bone-marrow-aspirate-concentrate-a-guide-35100.html
Hello, I would be interested to hear about total ankle replacement surgery. It has been recommended for me.
HI Stephanie
Ankle replacement can take away the pain from the arthritis and preserve the motion at the joint. This helps patients perform tasks such as walking on uneven ground and going up and down stairs. It also protects the other joints of the foot to help prevent them from getting arthritis
In many cases your doctor will remove loose cartilage and bone spurs from your ankle. Arthrodesis: Joint fusion surgery reduces pain by eliminating motion in the ankle. Arthroplasty: In a total ankle replacement, damaged cartilage and bone are removed and replaced with metal or plastic parts
Here are some links
https://www.arthritis.org/science/events-publications/ankle-replacement-options
https://www.arthritis.org/news/news-and-events/arthritis-foundation-joins-forces-aofas
https://www.dukehealth.org/treatments/orthopaedics/ankle-replacement-surgery
Looking for anyone who has had CMC osteoarthritis surgery; specifically trapeziectormy with ligament reconstruction (LRTI). I would like to speak with anyone who's had this done, to ask about your experience, recovery, and if you would recommend it. In between cortisone shots at the moment and am seriously consindering having this done. Thanks in advance.
Hi Keri
I have not had surgery in that area so I can only say wha I have researched for you
A trapeziectomy is a surgical procedure in which the trapezium, one of the bones of the wrist, is removed to treat symptoms of thumb arthritis. Most people experience an improvement in their arthritis symptoms after a trapeziectomy, including decreased pain and improved use of their thumb for gripping, pinching, and grasping.
Here are links
https://www.arthritis.org/health-wellness/treatment/joint-surgery/preplanning/five-surgeries-for-thumb-arthritis
https://www.verywellhealth.com/trapeziectomy-5089757
https://www.arthrex.com/resources/LT1-0410-EN/ligament-reconstruction-tendon-interposition-for-thumb-cmc-arthritis
https://www.touchsurgery.com/simulations/burtons-arthroplasty-trapeziectomy-with-ligament-reconstruction-and-tendon-interposition-4
Hello,
I am new to the group. I am interested in connecting with others who are struggling with osteoarthritis. I was in a very bad car accident about thirty five years ago in my mid 20s. As a consequence, I underwent a subtalor triple fusion. I have been advised that I need a total ankle replacement. I have been working on getting more fit by doing strength training and walking. I love to walk and I can walk up to three miles, but I am hobbled up afterward. The orthopedist said that this is to be expected and that physical therapy will not help, so I guess I'll go back to doing chair exercise. Has anyone undergone a total ankle replacement? I would be interested in hearing about the experience. It sounds terrible, but if it meant that I could have more mobility and pain (after the pain of the surgery and recovery), it might be worth it? Thank you in advance.
Hi Stephanie,
just read your response, I'm new to this group, but share with you the constant , non stop arthritis pain ! Sleeping is even miserable, I have had both my knees replaced and now am waiting for hip replacement. Currently I cannot walk without a walker,, and that is only for room to room walking , otherwise I have to use a mobility scooter, I am 56 years old and this has been going on for 5 years , still trying multiple meds to make a difference and keep it from spreading , it has spread also to my right shoulder. I found this site cause most people just can't relate to the pain I'm going through , I'm looking forward to connecting with others going through similar experiences!!
Obviously, I meant that if it would mean more mobility and less pain, it might be worth it. I would also note that I have almost constant pain even without walking long distances, and I experience pain and stiffness that make it difficult for me to perform day to day tasks (housecleaning, grocery shopping, etc.) I am able to do these things, but not without significant pain and stiffness during and after the exertion. Thank you again.
Are there any women in this group from CT who were runners and now can't run or do high impact exercise due to hip osteoarthritis?
Has anyone tried SoftWave therapy for knee arthritis and if so, what were your results?
Hi Karen,
I have. I had it when I lived in NE Ohio
mine was caled Extracorporeal Shockwave Therapy (SWT) therapy
It was for my knees and safely delivers shockwaves to the affected area of the knee, promoting healing at the cellular level. The therapy stimulates and recruits stem cells deep into the affected knee tissue, triggering a cascade of cellular events that promote tissue regeneration and healing.
I had pain reduction for about 18 months, then I had PRP injuections in a series of 3 injections over 5 months.
Both gave me a lot of releif. I still get stiff like the Tin Can Man but my joint pain is 60 percent better today at age 61 than it was when I was 40.
Always do your homework to verify their credentials. And if you have any other medical conditions always check with your Primary Care Dr,before trying anything
Here are some general links
https://my.clevelandclinic.org/canada/services/shockwave-therapy
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5361028/
I am getting an arthritis node on the left side of my noe end i am wondering if any one has that? Is it arthritis? I want to stop it from getting bigger.
Hi Marlene, have you seen your PCP? Maybe he can look at it and refer you to a specialist.
HI Marlene apologies for the delay in responding to your post, please consult with your physican so they can determine what is going on and offer a course of treatment.
Hello everyone!
I posted a few weeks ago about continuing pain after a cortisone shot. Turns out it wasn't my arthritius but a partially torn meniscus that finshed tearing. I've since had surgery and am now in PT to get mobility back. However, I do have arthritis which is why I assumed the pain was due to arthritis and not anything else. I really should have pushed for more answers when I realized the pain was not the same and was even in a different part of my knee. I've got to learn to speak up for myself.
Sorry you were in pain, but yes we have to speak up for ourselves, we know our better than anyone when it comes to pain and new pains, I used to be afraid of my PCP , now we work a s a team
You deserve the best care possible, and we can only get that when we speak up
One way to make navigating the system easier is by practicing what’s known as health-care advocacy, which involves taking an active role in medical planning to improve decision-making. Here’s how.
Write out a list of concerns.
Plan your questions before an appointment to avoid forgetting something, sometimes you only have 5-10 minutes to talk to your doctor.
Be a good historian.
Knowing your medical history — including past diagnoses or procedures, plus any current symptoms — helps your provider care for you. Always bring an up-to-date list of your medications, over-the-counter drugs and supplements to doctor’s appointments and the hospital.
Make a communication plan.
Take notes at your appointment (or have a family member or friend do it for you), but also ask your provider whether they will provide notes and action points.
Be sure to ask how you can reach your doctor in an emergency and how you can get timely answers to questions that aren’t urgent.
If you’re in a hospital, ask how your provider will keep you and your family informed. And make sure you’ve picked a health-care proxy, someone who understands your wishes and can make decisions if you cannot.
Links
https://www.arthritis.org/news/5-ways-advocate
Hello everyone!
I posted a few weeks ago about continuing pain after a cortisone shot. Turns out it wasn't my arthritius but a partially torn meniscus that finshed tearing. I've since had surgery and am now in PT to get mobility back. However, I do have arthritis which is why I assumed the pain was due to arthritis and not anything else. I really should have pushed for more answers when I realized the pain was not the same and was even in a different part of my knee. I've got to learn to speak up for myself.
Hello,
I was diagnosed with osteoarthritis of my left knee in 2022. I have received 2 rounds of cortisone injections which have helped during my flareups. i am on daily regimen of tylenol arthritis pills and ibuprofen (never taken together to take the pain down especially on bad days) to manage the pain and inflammation. I also drink low suger tart cherry juice every day to fight inflammation..
First, the pain is chronic physically tiring and can be very frustrating. on a everyday basis.Second, I do gentle yoga, yin yoga, chair yoga, and basic yoga as my main form of exercise (they help me to stretch which has decreased the pain).
Another frustrating part of this diagnosis is that I feel limited to what forms of exersise that I can do that will not aggravate my osteoarthritis. There are good days and bad days with my knee. Because I am being treated successfully for other chronic conditions like high blood pressure, anxiety, asthma, allergies, and prediabetes where exercise would benefit me, it is extra frustrating.
Hi! I've just joined this group. I was diagnosed with osteoarthritis two years ago when I started experiencing pain in my right knee. My doctor first thought it was a torn meniscus but after x-rays and an MRI decided it was arthritis. Received a shot in my knee for pain which lasted two years. Went back last week for another shot as the pain was back but it was worse. I'm not having the best results with this second shot. For two day after receiving it my knee was swollen and I couldn't walk. After that it was fine for about 4 days before getting bad again. I am back to being unable to put weight on my knee which makes walking difficult. I have missed three days of work because of the pain and may end up missing one more as I am considering calling out for tomorrow. Has anyone experienced this before?
Just joining in. Talking to my primary care team about pain is a challenge for me. When you are in chronic pain, how do you rank your pain? My usual response is 'no worse than usual'. Looking through these posts, I think I am missing out on some pain management strategies. Two years ago, my PCP recommended not taking NSAIDS because of reduced kidney function. Since then, I have relied in exercise for pain management.
How to start an in person group?
Become an Arthritis Foundation Volunteer
Thank you for your interest in starting an in-person group!
Please visit our volunteer portal and complete the facilitator application if you are new to volunteering with the Arthritis Foundation.
Looking forward to seeing you later today Wednesday September 6th 2023 at 8 pm ET / 7 pm CT / 6 pm MT / 5 pm PT
Osteoarthritis Connect Group - Joint Health Matters: Tips to Protect, Strengthen and Reduce Pain in Hands, Hips, Knees, and Feet
Zoom link: https://arthritisfoundation.zoom.us/meeting/register/tZIscu6prjovHdUv6XnRRk4Wtg2arn9fHcmt#/registration
HI EVERYONE!
SINCE FRIDAY, I HAD VERY SEVERE FLARE UP IN MY RIGHT KNEE. SORRY, I WRITE IN CAPITAL LETTER. I HAVE VISION PROBLEMS.
I WENT TO E.R. ONLY GAVE ME FOR PAIN. YESTERDAY, I WENT TO THE FAMILY DOCTOR AND APPLIED Kenalog 40 mg/mL INJECTION.
TODAY, I STILL HAVE INFLAMMATION. HOWEVER, I WOULD LIKE TO KNOW IF SOMEONE HAD THIS PROBLEM. IN THE PAST, I HAD SOME FLARE UP IN MY KNEE BUT BY 3RD DAY IS BETTER. KNOW, ALMOST A WEEK AND STILL HAVE THIS PROBLEM.
Hi, my name is Richard. I'm a 75-year old male. I retired from a 40-year career in IT in 2015. I've been an avid runner & cyclist since my late 20s. Over the last 10 years, I began suffering more frequently from back, neck, & hip pain. It's unfortunately getting less and less manageable. I take a 200mg Celebrex in the morning and a couple of 650mg Tylenol at bedtime. In addition to the pain meds, I've been taking a turmeric supplement for a couple of years. I've kind of given up on running, but now even cycling and walking are causing me pain. For walking, my hips and lower-back start protesting after about 20 minutes. I try to get 2-3 miles of walking in most days, but lately it's been challenging. Cycling doesn't cause too much pain while I'm doing it, but both walking & cycling cause lots of pain afterwards, especially the next day. The orthopedic doctor tells me that I have "advanced degenerative changes" of my neck vertebrae, with "reversal of the cervical lordosis". As far as my lower back is concerned, I have "moderate to severe disc degeneration at L4-L5 and L5-S1" with "advanced lower lumbar facet arthropathy".
Besides the medications, the orthopedic doctor at my most recent visit of a week ago recommended physical therapy (which I've tried with no improvement) and possibly injections. He also mentioned lumbar medial branch blocks in the future for my facet joint pain.
This is a great forum. I'm looking forward to hearing about what has worked for other folks dealing with arthritis.
I'm just joining the forum, so I just saw your post.
I am also in my 70s and have arthritis in lots of places, despite having exercised my entire life. Loss of walking capacity is probably the scariest thing, since remaining independent relies a lot on being able to walk. Although I try to walk every day, I also ride a recumbent tadpole trike and swim.
One of my goals in retirement was to do sprint triathlon. Knee replacement pretty much sidelined training for and entering races. Very recently I have decided to work on each of these disciplines anyway, in whatever fashion I can. I think a forum for those of us who want to retain some measure of our 'athlete' identity would be fun and helpful.
I also have cervical and lumbar herniated discs. I've had two cervical disc replacements. First one didn't work, second one did. Doctor advised me not to have surgery on my lumbar discs because it often makes things worse. I did facet injections for a few years then that quit working. I recommend physical therapy and TENS. You can get TENS through a physical therapist or even online. It really helps.
Good evening! My name is Christine and I too have OA with bone on bone for both knees, cervical and lumbar spine with sciatica and sacrum pain. Riding in a car or sitting is so painful. Fortunately, I work at home, however, as a social worker answering calls at a desk all day it is not the best for my physical health. Lately, I have been thinking of disability as I am concerned that sitting most of the day is compounding my pain and adding to my ddd. I too must lose weigh for any knee replacement and have been pushed for bariatric surgery to accomplish this. Knowing that support helps with so many issues. I have been trying to find a group that could help me emotionally as I find myself more isolated each day, unable to bear riding in the car any distance, walking with a cane and walker depending on pain level and feeling my world shrinking. I can no longer garden, do carpentry, stand to cook, so much more.
I love swimming and that is the only time I am painfree outside of laying down. My greatest fear is I will not be able to get to the pool or not be able to get in or out. I have been active all my life. This is so not me! I hope to hear from others, how they are coping, derive strength from their experiences and adjust or heal from this new experience!
Hello,
My name is MELINDA and i'm new to this group.
I have been diagnosed with osteoarthritis in my left knee, left shoulder with very little range of motion. Also, my right hip and lower right back all bone on bone. My left knee and shoulder are receiving Synvisc injections that ease the pain very little but better than nothing. My right hip and back are not quite as painful. Walking is extremely painful and at times I've reverted to a walker. I have minimal OA in my other joints are are starting to click and grind. I'm considering knee surgery on my left knee and possibly surgery on my left shoulder. I have a slew of other medical issues and also suffer from anxiety and depression which are heightened by the pain.
My primary suggested joining a support group so here I am. I'm looking forward to hearing from the group and also to hopefully help and support others. Thanks for accepting me.
Hello everyone! I was diagnosed with osteoarthritis today…at 37. I never knew this was something that happened this young. Mine is very far progressed, I have no tissues left in my feet or ankles, and 50% left of my knees. My rheumatologist told me my option was pain management for the “massive” (his words) bone spurs on my heels. He recommended pain medication, and bariatric surgery to rapidly reduce my weight so that it relieves pressure on my spurs.
He told me if I don’t do this, my spurs with triple in size in a year…with triple the pain. I am NOT a fan of stomach bypass, and I’m very scared of doing it. I need to lose about 100 pounds)
Has anyone done this? Do you recommend it? I wasn’t given any other options, and he warned me in 12 months I won’t have any cartilage left in my knees. Any advice or experience would be appreciated!
Thank you in advance!
jess
I am newly diagnosed with OA in my lower back. I also have arthritis in my toes and fingers. I want to not only participate in events online, but I want to find out if there are support groups in the Fort Myers area. Any information would be appreciated. Thanks!
I have recentlyn been diagnosed with spinal osteoarthritis and stenosis. I am 75 and have never experienced such chronic pain. The last 5 monthd I have barely
been mobile but now I am going to a physical therapist and on a diet to lose about 40 pounds. This is all so bewildering and discouraging and I look forward to
your support. What are the events I see links for?
here is the link for this evening's event; Thursday June 1st, 2023
Start Time: 7:30 pm ET / 6:30 pm CT / 5:30 pm MT / 4:30 pm PT
Osteoarthritis Connect Group -- What You Need To Know About Nutrition And Healthy Eating
https://arthritisfoundation.zoom.us/j/86122764149?pwd=TmVDdVRzalRXZkVadGdGS2VsSjI0QT09
I am new to this group. Have been athletically active for most of my life. Used to hike in forest preserves and rode mountain bike until entering my early 70's. I've been treated with Synvic shots for my left knee hoping to avoid knee replacement and so far it's worked for the last 5 years. My right hip is becoming a problem for just walking. Everyone tells me exercise will help. Not so far. I have Rheumtologist for my knee and hoping there is more to be done for the hip joint. Tylenol softens the pain, but it begins with every step. Exrays show mile to moderate Osteorthritis, but some how it seems a little more than that. Haven't seen Orthopedic surgeon yet....
Hi Lynn,
I'm new to the group as well. I have zero cartilage in either knee and some days the pain and stiffness severly limit my activities. I take Tramadol when the pain is very bad (and a bad day I may take 2 or 3 over 24 hours). It doesn't do much, but I don't want anything stronger. Tylenol helps some, and my heating pad might as well be my significant other seeing as it's always resting across my knees. Shots haven't helped. I'm too heavy for knee replacement, so losing weight is a primary focus. Has the rheumatologist helped you with pain management?
Kathy
Hi,
I have severe osteoarthritis in at least 6 joints (both knees, both shoulders, both hands) and repeated problems with my feet. The feet haven't been diagnosed as arthritis but I suspect that every joint in my body is on the way to deterioation. I have had my left knee joint and my right thumb joint replaced. Right thumb is doing great but now the arthritis has moved to the finger joints. The left knee got better after replacement (1 year ago) but is now hurting again. I have an orthopedist and a general practioner doctor - each thinks the other is dealing with my arthritis and pain. No one will refer me to a rheumatologist because I don't have ra and there are only 3 rheumatologist in the whole county. So I am out here in constant pain and gee I thought maybe a support group might help.
Hi Carol,
I'm hoping this support group will help me as well. I have zero cartilage in both knees and my thumbs ache on very bad weather days. I struggle with how limiting the pain is. I was using curbside before Covid made it popular. Maybe we can help each other.
Kathy
Hi,
I am newly diagnosed with arthritis on the facets of my lumbar vertebra. I knew, eventually this would occur, after dealing with spinal herniations for many years. It's a pleasure to reach out to you. I hope to talk with you soon.
Welcome to the group, we are glad you have joined us.
Hello!
I am new to support groups. I am hoping for information and to connect with people that understand the frustration and pain of arthritis. I have a long complex medical history and the journey isn't over yet. After 10 years, I finally have an official diagnosis of Osteoarthritis. I'm hoping that the new medication will decrease my chronic inflammation.
Does anyone have any suggestions or tips on reducing chronic inflammation?
I also wanted to know if there was an actual Arthritis Support Group in my area (Bloomfield-Hartford, CT). I am really at my wit's end with not being able to use my hands/fingers like I want to. Making dinners, chopping, cutting, etc. has become very hard. Any thoughts would be helpful. Thank you.
I am new to this group. I have degenerative disc disease in my spine and lower lumbar, but mostly now, I am suffering greatly with erosive osteoarthritis in my fingers and knuckles. I go to the Rheumatologist, have seen a hand specialist, gone to Occupational Therapy and nothing relieves this incredible pain. My husband passed away 1-1/2 years ago and I am still in a grieving mode. I wonder if that has exacerbated this incredible inflammation and pain. I don't sleep well. Thanks.
jbl1947
Hi Judith,
I'm sorry for your loss. Grief can do so many things to us, so I'm sure your arthritis is in high gear. Seems like kicking someone when they're already down--unfair. I'm new to this group, and I'm hoping I can make connections with at least a few folks for camaraderie and support. Someone who will understand the pain and limitations caused by arthritis. Sometimes my pain and fear can take over, and I can't see the forest for the trees. I have osteoarthritis in both knees and thumbs.
I don't know if you will see this message, but I would love to hear from you. I hope you are feeling a little relief since April.
Kathy
Hello all, I am new to the group. I am 66 and have been suffering from erosive/inflammatory osteoarthritis of my fingers and lumbar spine for 13 years (since menapause). I've had six surgeries to fuse or repair joints in my fingers; fusions worked to stop pain, but repairs of my basal thumb joints did not. I've also had two spinal laminectomies for stenosis, and fusions of L2/L3 and L3/L4. My fingers are very limited.and my thumb joints hurt nonstop inspite of taking many supplements and diclofenac. Please share medications and supplements that you have found effective. Thanks so much.
Hate that we are all suffering, but glad that we can connect and commiserate.
Hi everyone!!
My name is Teresa! I am new to this group!
I have osteoarthritis of my cervical and lumbar spine, and of my left knee.
I am excited to talk with other people who are also dealing with osteoarthritis.
Teresa
Hi Rebecca,
I'm new to this group. Reading yor response to Teresa felt like reading my own story. Sometimes the pain in my knees makes me cry and I don't know what to do. It's a domino effect because then my stress builds on the pain and so on and so forth. I'm hoping by joining this group that I will find a support group. my orthopedic doctor prescribes Tramadol as needed, but I don't take it daily. On a bad day, I may take 2 over a 24-hour period, but it doesn't do much. It might help you. It's non-addictive.
I've dealt with OA for at least 8 years. I have zero cartilage in either knee and this past few years my thumbs have also gotten somewhat stiff and painful. Thankfully I live in a warmer climate and don't have many cold days, but rainy weather makes my joints ache and we do get quite a bit of rain. I don't care what the experts say about weather not really affecting joints because my bones tell me when weather changes are coming.
Sadly, I am that grandma who can't walk very well. It's a truth I must deal with. But I still try to do as much as possible. Yes, I have flare-ups, but I'd like to learn more about how to head them off.
Kathy
Hi Teresa! Nice to meet you. I just joined this group today and, like you, am looking forward to talking with others dealing with OA. I have OA in both knees, severe (Stage 4) in the right and moderate (Stage 3) in the left. I was a distance runner since junior high, and had to quit in 2014.
I'm reaching out because I have days, weeks even, where the pain is very manageable. Then I have days like today, where I can barely walk, I'm close to tears, and contemplating going to the ER! I've noticed that when the pain is this severe I feel extra stressed and even a little depressed because I feel like I cannot deal with the pain. I am not a grandparent yet, but I am worried about being the grandma who can't walk. It's just one thing on top of another.
How are you managing your symptoms? Do you experience good days, then have flare-ups? The concept of a flare-up was so new to me. How long have you been diagnosed with OA?
Rebecca
I am new to the group. I have had Osteoarthritis and fibromyalgia for 15 years and it has gotten have to continue working. I use vacation days just to shorten my week of work now and I am in so much pain and turned I am unable to do anything outside of work. I want to take some time off and hope to be able to receive short term disability but it is scary and from I heard is difficult to do. Just wondering if others have had the same issue.
Teresa, how much turmeric and glucosamine do you take?
I understand to some extent of what you're going through. In 2021, I was also unable to do much of anything else other than work and left work at the end of my shifts crying in pain all of the way home. It was a very depressing year for me. I am not familiar with fibromyalgia and am uncertain what treatments you have done or what areas of your body your osteoarthritis affects. For me, I found medrol packs and epidural injections gave me the most relief during that year until one of my doctors told me I needed to be taking Turmeric and glucosamine. Several weeks after I began taking those 2 medications I began noticing I had more days between my pain flare ups. I am not suggesting you take any of these medications but reach out to your doctor daily if you have to. I would suggest keeping a journal of your symptoms looking for any common causes, take these with you and a list of any questions you have, including short term disability. I wound up seeing at least 10 different specialists. In 2022 almost every day I wasn't at work I had an appointment with a doctor, testing, and/or physical therapy. I suggest keeping in contact with this group, any other support groups you're in, and seeing a therapist. I found that it was very difficult to deal with this type of pain on your own and for me it was more than my spouse could handle. I draw pictures and write journals. Look for happiness and joy wherever you can find it. I have a wellness journal called you're doing so well that helps me to create little goals each week and stay on track. Keep me updated.
Hello Everyone!
I have had osteoarthritis for over 50 years. I believe I may also have fibromyalgia and have an appointment with the doctor this week
I am happy to learn all I can about pain management and look forward to enlightening discussions.
I am very happy to be a part of this group
Hi Annette, it's nice to meet you. My name is Teresa. I have been dealing with osteoarthritis for at least 10 years.
Everyone's pain is different and probably everyone will have their own treatment plan that works for them.
My granddaughter has cerebral palsy and there was a treatment team (neurologist and orthopedic doctor) that came to her physical therapy location once a week to see patients there. I don't know about all of you but there is no one on my treatment team that knows me better than my physical therapist. For some reason when I began going to see pain management I expected it to be like my granddaughter's team. It was not like that. But if there was one thing I could do differently it would be to change the way osteoarthritis of the spine is treated and the treatment team would have their own clini, preferably at the physical therapy location, where the neurologists, orthopedic doctors, pain management, and chiropractors all assess the patient and collaborate on the course of action.
Sorry I digressed. Keep me posted on how you are doing!
Looking forward to seeing you this evening
Osteoarthritis Connect Group - Encore Meet and Greet
Thursday March 23rd 2023
7:30 - 830 PM Eastern time
Zoom link: https://arthritisfoundation.zoom.us/meeting/register/tZMkde-qqzMtGNyDP6p4BxxAJtp171pndien
When is the next one?
Hello Everyone, Im Lizzy. I live in New York City.
I have just been diagnosed with early onset osteoarthritis of the Knees and Right Hip for Now. I am overweight and I am 49 years old. Iam saddened and excited to be here.
Thank You for having me.
Hi Lizzy!
I'm Rebecca and I live in San Antonio, Texas. I am also 49! I feel "too young" to be dealing with OA of my knees, but I guess OA doesn't care about age. I am also weighing in more than I should, and last week I started going to a gym to use their pool and sauna to get stress free exercise and pain relief. I had been feeling very good for about a month, then a flare-up started yesterday, and now my world is turned upside down again. I am happy to meet you and look forward to sharing with you.
Rebecca
Hi Elizabeth,
Nice to meet you.
I am also 49.
Good luck on your journey. Keep me posted!
Teresa
Hi, Everyone. My name is Kathy. I have Osteoarthritis in many joints. I'm from San antonio, Texas. I paint and draw. Its good therapy for me. Looking forward to meeting you all here.☺
Hi Kathy, i love to paint as well. hopefully we can share our art with each other.
Hi everyone! I just joined, my name is Sasha and have been diagnosed with osteoarthritis in my shoulder (its bone to bone and got shoulder surgery last year). My doctor doesnt want me to get shoulder replacement surgery until I'm older). I'm having a very hard time adjusting (especially since I've always been active and want to continue. Does anyone have any advice on how to approach exercise without giving it up completely? Sometimes the pain from training becomes so unmanageable.
Thats good to know, i do my exercises in bed like my doctor suggested and i find that the pain subsides during sleep.
I think thats a question that most of us have, we want to know that we can still be active, even with having this thing. Nice meeting you Sasha
I find that walking and swimming really helps with my joint pain. Just start slowly.
Hello OA group! My name is Tracy and I have OA. Two partial knee replacements later, it has worked its way up to my SC joint (the joint at the front base of you neck near collarbone). Im having a hard time finding an OA specialist that will try to address the SC joint (it's uncommon and a sensitive area). Thought I'd post to see if anyone has any recommendations for the Chicagoland area? At this point, I'm also willing to travel. Thanks for any reco's you may have!
I am looking forward to the information you get!! i think we are gonna be alright
I was diagnosed with osteoarthritis of my left knee when I couldn't walk on it. I have had a cortisone shot which has helped! The doctors have told me to exercise and eat antiflammatory fruit and vegetables! They recommended Omega 3, too. I am nervous about going back to work so I don 't do further damage.
Does anyone have any additional advice or support which has helped them? I truly appreciate anyone's input! Thank you!
Hi Marcia - I've had two partial knee replacements thanks for OA, but had tried pretty much everything before making the decision the get those done. Sounds like you're doing what's needed, but strengthening your knee is important. If you can go to a physical therapist, they can work with you n the right exercises. Otherwise, there's plenty of recommendations online for that as well. And just remember, when it gets inflamed, ice is your friend!!
HI Marcia... thanks for posting on our group's bulletin board. I will send you a message. I hope you can join us for our upcoming event and woulld suggest that your visit our osteoarthritis hub which is jam packed with larticles and resources. at https://www.arthritis.org/osteoarthritis-patient-education.
this article may be of interest: https://www.arthritis.org/diseases/more-about/slowing-osteoarthritis-progression
HI everyone,
I hope this note finds you well. If you are new to the group Welcome!
Wanted to share that there is a webinar tonight if you are available to attend.
Thank you for taking a moment to learn what's happening,
Reach out if have questions and I look forward to seeing you at our upcoming event!
Haydee
Haydee Sedlmeier (she/her)
Live Yes! Connect Group Facilitator West Los Angeles, CA
M: (310) 210-6326 [email protected]
Arthritis Foundation Help Line 800-283-7800
Susan Mitchell
Live Yes! Connect Groupd OA Facilitator
Good morning - you can also support your local connect groups by looking up your state and nearest city at Find a local Group near you
or if link doesnt work go to https://connectgroups.arthritis.org/ and search by state etc..
I see that our first event is at 5:30 am pacific time, so needless to say I won't be there. I hope there will be some later in the day! It'll be great to meet you all.
Oops maybe it's PM? In which case I will try to attend!
Hi, I have osteoarthritis. I'm looking for an online support group that meets weekly. Can anyone help?
thanks
HI Lori T and welcome. This is a new group and details are in the works.
I am not sure what state you are in but we also have local connect groups that are virtual and some are in person.
Live Yes Connect Groups
You would search by state and area or you can always jump into one of mine
I am in Ohio - Mahoning Valley and I also have one for Orlando East Florida
Feel free to message me and I can try to help ya find a few.
Have a great day
Deb Andio
Hello, everyone. Just joined the group. I have osteoarthritis.
Welcome Kathryn, and thank you for joining our Live Yes! Connect Group.
I just joined this support group. Do you meet online or in person?
I have chronic pain due to OA. I cannot sleep at night. I cannot take aspirin or NSAIDS. Tylenol does not help much. I do not want to get addicted to opioids or Tylenol PM. Any suggestions?
Barbara
Hi Barbara
welcome
we meet virtually.
here is some information on OA , I had pain relief from PRP injections but talk to your doctor, as it depends on stage of OA progression.
May I ask what state you are in? Because there are also local connect groups and you can always join mine as well
https://connectgroups.arthritis.org/groups/mahoning-valley
https://www.arthritis.org/diseases/osteoarthritis
we will discuss a variety of things here.
Deb
Hello and Welcome Everyone !
Hi - I am a 75 yo female who has had OA/fibromyalgia for a number of years. However, over the last year I have not been able to put up with the pain and immobility. Last week my doctor finally said I was ready for replacement of both knees. He also said that 1 out of 5 replacements don't help. I am really concerned about doing the operations but feel I must take the chance. What do you folks think?
Welcome Chris, and thank you for joining our Live Yes! Connect Group. On behalf of our community, we want to welcome you to the group. We look forward to meeting you.