Welcome to the

Gout Connect Group

Gout
18 Members

This online group serves the members of our arthritis community who are living with Gout and related conditions from across the country. We invite those who are looking for support, education, robust programming, expert speakers, and connection to join us and meet others who understand.  

Live Yes! Connect Groups offer connections, education, and empowerment. Adults living with arthritis from across the country come together online for professional- and volunteer-led sessions on topics, as well as fun group activities.

We offer a place of understanding and encouragement for both people living with arthritis and their loved ones. Group participants become self-advocates, develop self-management skills, and learn how to not just survive life with arthritis but to thrive.

Upcoming Events

  • Saturday, May 18th, 2024
    7:30 PM ET
    1h 30m
  • Virtual Event
  •   2 people attending
Gout Connect Group - May 18 2024 Meeting

We'll have our quarterly Zoom meeting on May 18th, 2024 at 7:30 pm ET / 6:30 pm CT / 5:30 pm MT / 4:30 pm PT.  More information to come soon about this 90-minute event!   We'll make sure there's plenty of time to share tips for wellness & great community vibes.

There will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings.

We respect privacy and confidentiality and do not record our online meetings.

Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required, nor having a Zoom account. A confirmation email will be sent upon registration with the Zoom link. If you do not receive the registration confirmation, please check your spam folder. Please plan to log in a few minutes early.

We look forward to seeing you soon!

 This is a Virtual Event. 
Facilitator(s)
Members
  • Event List
Arthritis Foundation Event
  • Saturday, May 18th, 2024
    7:30 PM ET
    1h 30m
  • Virtual Event
  •   2 people attending
Gout Connect Group - May 18 2024 Meeting

We'll have our quarterly Zoom meeting on May 18th, 2024 at 7:30 pm ET / 6:30 pm CT / 5:30 pm MT / 4:30 pm PT.  More information to come soon about this 90-minute event!   We'll make sure there's plenty of time to share tips for wellness & great community vibes.

There will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings.

We respect privacy and confidentiality and do not record our online meetings.

Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required, nor having a Zoom account. A confirmation email will be sent upon registration with the Zoom link. If you do not receive the registration confirmation, please check your spam folder. Please plan to log in a few minutes early.

We look forward to seeing you soon!

 This is a Virtual Event. 
Facilitators [1]
Members [18]

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Connect Group - National - Gout

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Comments [8]
Kevin M
Kevin M
September 10, 2023 - 9:26 PM

New to the group. Learning how to live with gout. I have been finding a lot of conflicting information about safe foods. Does anyone have a web site with reliable information on purine levels of foods?

James K
James K
September 19, 2023 - 11:51 PM

Welcome Kevin, nice to have you aboard!   I honestly don't know which site is most reliable for this info, but I'll ask around the Foundation & get back to you here soon.  I would definitely start with the Mayo Clinic's pages.  I hope you will be able to attend our online group meeting in November!

James K
James K
June 5, 2023 - 2:28 AM

Okay let's try this again!  

Please vote on this Doodle calendar poll whether you'd like to meet on August 12th or 13th.  We would like to accommodate as many folks as possible, and the sooner we decide on a date, the more time we'll have to spread the word & get even more gouty friends involved!

https://doodle.com/meeting/participate/id/el2g9xjb

Davr P
Davr P
May 25, 2023 - 2:02 PM

Does anyone test their uric acid levels at home?

Jon Y
Jon Y
January 14, 2024 - 7:37 PM

Yes, I do. Probably more frequently than I should do but I'm still learning. I like to reassure myself that my levels are below the saturation threshold.

I use an Accugence tester that I ordered from Amazon (in the UK). Simple prick test that seems reliable enough.

My levels seem to coincide with how I'm feeling at any given time, so actually, when I'm feeling good, I test a lot less.

I'm not sure actually what good it does. I'm starting to think rather than stressing myself out by testing all the time I should just focus on maintaining a healthy diet and staying hydrated, but being able to test at home definitely has its merits..

James K
James K
May 31, 2023 - 12:27 AM

I've never heard of this before, great question!  Is there an over the counter testing kit you'd recommend?

Teresa W
Teresa W
May 20, 2023 - 1:23 AM

Southern California friends - You’re invited! To help raise awareness, we’ve partnered with Horizon Therapeutics to host #WeeditGout community event in the Orange County area.

Join us on June 10 to learn about out-of-control gout, connect with other gout patients and caregivers, and give back to the community through a park cleanup.

Light breakfast will be provided, as well as free handouts for attendees. See event flyer for additional event details and email [email protected] to RSVP.

(1) Facebook

 

 

 

James K
James K
May 11, 2023 - 2:42 PM

Hello everyone,

Please fill out this Doodle thing so we can make our next Gout Group meeting as conveniently-timed as possible!  Feel free to invite others who are interested in, or have gouty arthritis...

-JimK, [email protected]

Renee M
Renee M
April 26, 2023 - 10:50 PM

The only way I found out that I have Gout was elevated uric acid and later a ultrasound confirmed that gout was in my wrist and causing active damage.  I am now on Allopurinol 300mg daily and my last uric acid is down to 5.5 so both my Rheumatologist  and Kidney Doctor are happy right now.

Jane S
Jane S
April 13, 2023 - 4:59 PM

My Dr has asked me to track my food and flare ups. My question is: what is the lag time between when you eat a trigger food and the onset of a flare? An hour? 3 hours? 24 hours? Thanks for any insights!

James K
James K
April 25, 2023 - 12:10 AM

For me, overnight is my usual timeframe for ingestion of trigger food ➡ pain in my foot.  Thanks for posting, glad to have you here!

James K
James K
April 15, 2023 - 1:57 PM

For me, overnight is my usual timeframe for ingestion of trigger food ➡ pain in my foot.  Thanks for posting, glad to have you here!

James K
James K
March 3, 2023 - 12:21 AM

WELCOME!!

We just got this Connect Group up & running, so now let's get some folks onboard!  Feel free to introduce yourself, ask questions, etc with a post here on the Discussion Board while I try to figure out how to get our first meeting arranged.

-JimK