Welcome to the
Psoriatic Arthritis Connect Group
Psoriatic Arthritis
116 Members
This online group serves the members of our arthritis community who are living with Psoriatic Arthritis and related conditions from across the country. We invite those who are looking for support, education, robust programming, expert speakers, and connection to join us and meet others who understand.
Live Yes! Connect Groups offer connections, education, and empowerment. Adults living with arthritis from across the country come together online for professional- and volunteer-led sessions on topics, as well as fun group activities.
We offer a place of understanding and encouragement for both people living with arthritis and their loved ones. Group participants become self-advocates, develop self-management skills, and learn how to not just survive life with arthritis but to thrive.
Upcoming Events
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Sunday October 15th 20237:00 PM ET1h 30m
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Virtual Event
- 25 people attending
Grab your favorite caffeine beverage and join your fellow Psoriatic Arthritis Connect Group members to connect and converse. The session will allow us to share whatever is currently most important in our arthritis journeys – what we’re struggling with, successes, opportunities, to ask for help or advice, etc. We will have a starter topic or question to get the conversation going and then can branch out to any topic that is important to you. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings. We respect privacy and confidentiality and do not record our online meetings. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent the day of the event to those who RSVP. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you soon!
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Sunday January 14th 202412:00 PM ET1h 30m
-
Virtual Event
- 7 people attending
Grab your favorite morning beverage and join your fellow Psoriatic Arthritis Connect Group members to connect and converse. “Coffee Conversations” will be offered 4 times during the year. These sessions will allow us to share whatever is currently most important in our arthritis journeys – what we’re struggling with, successes, opportunities, to ask for help or advice, etc. We will have a starter topic or question to get the conversation going and then can branch out to any topic that is important to you. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join. We respect privacy and confidentiality and do not record our online events. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent a few days before the event, for those that rsvp. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you!
- Event List
-
Sunday October 15th 20237:00 PM ET1h 30m
-
Virtual Event
- 25 people attending
Grab your favorite caffeine beverage and join your fellow Psoriatic Arthritis Connect Group members to connect and converse. The session will allow us to share whatever is currently most important in our arthritis journeys – what we’re struggling with, successes, opportunities, to ask for help or advice, etc. We will have a starter topic or question to get the conversation going and then can branch out to any topic that is important to you. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings. We respect privacy and confidentiality and do not record our online meetings. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent the day of the event to those who RSVP. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you soon!
-
Sunday January 14th 202412:00 PM ET1h 30m
-
Virtual Event
- 7 people attending
Grab your favorite morning beverage and join your fellow Psoriatic Arthritis Connect Group members to connect and converse. “Coffee Conversations” will be offered 4 times during the year. These sessions will allow us to share whatever is currently most important in our arthritis journeys – what we’re struggling with, successes, opportunities, to ask for help or advice, etc. We will have a starter topic or question to get the conversation going and then can branch out to any topic that is important to you. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join. We respect privacy and confidentiality and do not record our online events. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent a few days before the event, for those that rsvp. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you!
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Sunday April 14th 202412:00 PM ET1h 30m
-
Virtual Event
- 4 people attending
Grab your favorite morning beverage and join your fellow Psoriatic Arthritis Connect Group members to connect and converse. “Coffee Chats” will be offered 4 times during the year. These sessions will allow us to share whatever is currently most important in our arthritis journeys – what we’re struggling with, successes, opportunities, to ask for help or advice, etc. We will have a starter topic or question to get the conversation going and then can branch out to any topic that is important to you. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join. We respect privacy and confidentiality and do not record our online events. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent a few days before the event, for those that rsvp. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you!
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Sunday July 14th 202412:00 PM ET1h 30m
-
Virtual Event
- 4 people attending
Grab your favorite morning beverage and join your fellow Psoriatic Arthritis Connect Group members to connect and converse. “Coffee Chats” will be offered 4 times during the year. These sessions will allow us to share whatever is currently most important in our arthritis journeys – what we’re struggling with, successes, opportunities, to ask for help or advice, etc. We will have a starter topic or question to get the conversation going and then can branch out to any topic that is important to you. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join. We respect privacy and confidentiality and do not record our online events. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent a few days before the event, for those that rsvp. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you!
-
Sunday October 13th 202412:00 PM ET1h 30m
-
Virtual Event
- 4 people attending
Grab your favorite morning beverage and join your fellow Psoriatic Arthritis Connect Group members to connect and converse. “Coffee Chats” will be offered 4 times during the year. These sessions will allow us to share whatever is currently most important in our arthritis journeys – what we’re struggling with, successes, opportunities, to ask for help or advice, etc. We will have a starter topic or question to get the conversation going and then can branch out to any topic that is important to you. After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join. We respect privacy and confidentiality and do not record our online events. Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration. The Zoom link will be sent a few days before the event, for those that rsvp. If you do not receive the link, please check your spam folder. If you need additional login information, please visit the group’s discussion tab the day of the event. Please plan to log in a few minutes early. We look forward to seeing you!
Facilitators [3]
Members [116]
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Connect Group - National - Psoriatic Arthritis
Comment
Comments [13]
📌 Wanna chat with others Living with Psoriatic Arthritis? Head over the Online Community Forums and log in with your Connect Group credentials - https://liveyes.arthritis.org/#/Posts/11
Hey there -
I hope veryone had a great Memorial Day Weekend!
I wanted to check in - how has the change in weather impacted your PsA? If any?
Caitlin
Hi
Second Valerie to join the group.
Sorry to see others symptoms are greater than mine. Skin is clear with meds, but joint stiffness has been a concern. Staying active seems to help.
Look foreward to events and discussions
Hi There - Welcome to the group! Safe space here - we are here to support you.
What are you doing to stay active? I am currently biking whenever my body will allow me to.
I am new to the group and was wondering which medication has worked well with psa. I have tried skiyrizi, taltz and had infusions, now I am on Tremfya. I just started an injection with that. My Dr feels this will be the one.
has any one used Tremfya and if so how have the results been?
Rodger Smith
Hi Roger -
I was on Tremfya for a couple rounds and it didn't work for me - previously I was on Remicade and recently was able to get back onto infusions. Overall I think my body was going through a crazy transition and the pain was too much for me - I don't tie that to the drug.
Thank you for allowing me to be part of your group. Having PsA is frustrating in itself, but I guess some consider me lucky since I don't have obvious psoriasis skin problems. Mine are all internal, mixed with gout and possible osteoarthritis in my cervical spine. Also due to other health issues I can't take any ibuprofen or other meds similar to it for pain. I was on a medication and had to stop due to liver damage. Now trying to get insurance to approve biological meds
Renee - how are you feeling now? I can definitely relate to the internal piece of PsA - the stomach issues and the other "fun" symptoms are tiring in itself. How can we support you here.
Right now, i can't handle the depression
Sue - I am sorry for the delay here, how are YOU doing?
Sue, I sorry about the depression as I have it also, but asked my Dr to give me a few months before she considers mens. Don't get me wrong we all need a little help once in a while especially trying to deal with PsA. Please discuss how you are feeling with someone because it can help alot.
Hi, I'm a new member but I've had psoriatic arthritis for over 12 years. I also have fibromyalgia and depression.
New member here. So happy to see the live yes psoriatic arthritis group. Like Valerie in the comment below, I'm hoping for an active support group. If nothing else, maybe Valerie and I can connect 😊
Vicki
Hi Vicki!
Welcome to the group! We are so happy you are here. Please do sign up for the April 20th Meeting at 8pm EST / 5pm PST. I look forward to seeing you there.
Hey folks!
Joining for the first time and having some difficulty finding info on when/ how to connect.
I hope there is an active support group! I'm very keen on meeting other people who are dealing with PsA.
Thanks for pointing me in the right direction...
How do I sign up? I went to Events and I don't see a link or anything
Hi Valerie -
Welcome!! Please go to "Events" and sign up for our next session on April 20th at 8pm EST / 5pm PST. We look forward to welcoming you to the group and getting to know you better.
Hey there! Just got the email survey regarding meeting times. I didn't see a box to put the info, but I generally work until 4:45 PST most weeks and would be late to a weekday meeting- how long do the meetings go, and is it okay if I join later in the meeting? I'd definitely vote for weekend meetings if at all possible. Excited to connect with the PsA group. :)
Hey there - we got your response, thank you! Joining the meeting later is completely fine, no worries at all.
Do you want to connect with others between meetings?
Visit the Online Community at https://liveyes.arthritis.org and find the Psoriatic Arthritis Discussion
Happy New Year!
What is one thing you will like to focus on in 2023?
For me, I want to be better at listening to my body when it gives me signs that a flare up is coming vs. powering through the stiffness and pain.
Let me know which techniques work for you! I am trying to get into mindfulness mediations as well :-)
A little late, but Happy New Year! lol
This year, I am trying to incorporate short meditation sessions into my day to manage stress :)
I'm not sure how this works, but am desperate for someone who understands, and can help me find my way back to positivity. Advanced Lymes Disease led to three types of arthritis, including psoriatic, and a life that I only sometimes recognize. I'm having a holiday flare now, and would like to learn to rewire my brain to better cope with the pain. I'm a strong Christian, and hope to connect with others on the same path as me.
Jane - How are YOU doing? How has faith helped you in your journey? I have found prayer, meditation, and simply just havin support is so helpful in these challenging moments. I am here for you - please reach out if you will like to chat 1:1.