Psoriatic Arthritis Connect Group

I would like an in person support group also.  I do not find any in Oregon.  Can I start one?  And how do I do that?

Hi, I have had my diagnosis recently changed from osteoarthritis to psoriatic arthritis.  I am greatly relieved to have a diagnosis that recognizes the inflamatory nature of my joint problems.  It has taken years of increasing painful joints to finally get this diagnosis and fighting with various doctors to get treatment as all my joints became involved and they kept insisting it wasn't inflammatory.  Recently I traveled 2 hours away to a bigger city to go to a rheumatogist.  Finally someone who believed me and explored my problems!  I was not expecting the psoriatic arthritis diagnosis.  I have had mild psoriasis since I was a toddler but I just didn't realize it was a factor until the rheumatologist cross examined me about flaking spots.  Recently my rheumatologist prescribed Rinvoq and it is really helping my severe joint pain and severe morning stiffness and my 'spots' are better than they have been in years. I joined this group to understand how others deal with this disease and the issues it causes.

I need help with managing the fatigue. I can't function because of it. It's basically debilitating me. 

Hello everyone, 

My name is Brian. I am 43, a husband, father and veteran still serving. I am fairly new to this. It has been nearly a year since my diagnosis and everyday is a new day. Feeling great in the morning or evening, fatigued most of the time, constant pain. What are things that can be done to have some consistency or plato the symptoms? 

Tapping this on Sunday Jan 14, at 9:10 am Pacific time, with a "Waiting for the host to start the meeting" message on Zoom--do I hve the wrong time?

Hi! I just recently joined the group! I'm hoping to find others who can relate to me with having PSA cause no one else I know has it. I'm 22, so I feel like I'm missing out on a lot because of my diagnosis. Glad to be here! Thanks Yall! 

Hi Everyone, I am a brand new member....and I am definitely still finding my way around this social media medium.  Please forgive my ignorance.  I have a question for you'll.  My PSA has been diagnoses without bloodwork to support it.  I understand few people are seropositive.  But, I am struggling to come to terms with the dx.  Denial has been my friend.  If any of you have ideas or suggestions of things that support your dx even though you are sero-negative, please share this with me.  I am in my 60's and have suffered for many years.  Thank you!  Kellie

Hey there - 

I hope veryone had a great Memorial Day Weekend! 

I wanted to check in - how has the change in weather impacted your PsA? If any?

Caitlin

Hi

Second Valerie to join the group. 

Sorry to see others symptoms are greater than mine.  Skin is clear with meds, but joint stiffness has been a concern.  Staying active seems to help.

Look foreward to events and discussions

I am new to the group and was wondering which medication has worked well with psa.  I have tried skiyrizi, taltz and had infusions, now I am on Tremfya. I just started an injection with that. My Dr feels this will be the one.

has any one used Tremfya and if so how have the results been?

Rodger Smith

Thank you for allowing me to be part of your group.  Having PsA is frustrating in itself,  but I guess some consider me lucky since I don't have obvious psoriasis skin problems.  Mine are all internal, mixed with gout and possible  osteoarthritis in my cervical spine.  Also due to other health issues I can't take any ibuprofen or other meds similar to it for pain.  I was on a medication and had to stop due to liver damage.  Now trying to get insurance to approve biological meds

Right now, i can't handle the depression 

Hi, I'm a new member but I've had psoriatic arthritis for over 12 years. I also have fibromyalgia  and depression.  

New member here.  So happy to see the live yes psoriatic arthritis group. Like Valerie in the comment below, I'm hoping for an active support group. If nothing else, maybe Valerie and I can connect 😊

Vicki

Hey folks!

Joining for the first time and having some difficulty finding info on when/ how to connect.

I hope there is an active support group!  I'm very keen on meeting other people who are dealing with PsA.  

Thanks for pointing me in the right direction...

Hey there! Just got the email survey regarding meeting times. I didn't see a box to put the info, but I generally work until 4:45 PST most weeks and would be late to a weekday meeting- how long do the meetings go, and is it okay if I join later in the meeting? I'd definitely vote for weekend meetings if at all possible. Excited to connect with the PsA group. :)

Happy New Year! 

What is one thing you will like to focus on in 2023?

For me, I want to be better at listening to my body when it gives me signs that a flare up is coming vs. powering through the stiffness and pain.

I'm not sure how this works, but am desperate for someone who understands, and can help me find my way back to positivity. Advanced Lymes Disease led to three types of arthritis, including psoriatic, and a life that I only sometimes recognize. I'm having a holiday flare now, and would like to learn to rewire my brain to better cope with the pain. I'm a strong Christian, and hope to connect with others on the same path as me.