Welcome to the

Psoriatic Arthritis Connect Group

Psoriatic Arthritis
176 Members

This online group serves the members of our arthritis community who are living with Psoriatic Arthritis and related conditions from across the country. We invite those who are looking for support, education, robust programming, expert speakers, and connection to join us and meet others who understand.  

Live Yes! Connect Groups offer connections, education, and empowerment. Adults living with arthritis from across the country come together online for professional- and volunteer-led sessions on topics, as well as fun group activities.

We offer a place of understanding and encouragement for both people living with arthritis and their loved ones. Group participants become self-advocates, develop self-management skills, and learn how to not just survive life with arthritis but to thrive.

Upcoming Events

  • Sunday, April 14th, 2024
    12:00 PM ET
    1h 30m
  • Virtual Event
  •   13 people attending
Psoriatic Arthritis Connect Group – Experience Arthritis Friendly Movement

Join us on April 14, 2024, beginning at 12 pm ET / 11 am CT / 10 am MT / 9 am PT for a 90 min arthritis friendly movement experience. We are delighted to have Priyanka Varma, M.S., RYT-500 joining us for Functional Yoga for Arthritis that does not require getting down on the floor. This session will be a practice of simple movements to mobilize all the joints of the body, increase flexibility of the joints and manage the pain, because the more we move our joints, the less the inflammation build up in that area. We might use some household props like a sturdy chair without wheels, thick book, a scarf, or bed pillows for the practice.

Priyanka Varma is a Pain Management therapist who uses ancient techniques combined with cutting edge research to help clients manage their pain better. She is an expert in Therapeutic Yoga, Pilates, Vacu-Cupping, Meditation, Stress Management and Energy Healing. She is currently pursuing a certification in Yoga Therapy, with focus on Yoga for Arthritis and Chronic illnesses. She has double masters in Statistics and Population Sciences. She’s co-founder of her company Prana Zone, whose motto is ‘Breath is Joy!’ Presently, she’s working with seniors in assisted-living and memory care facilities and working with several clients one on one in yoga therapy sessions, in-person and via Zoom.

After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings. We respect privacy and confidentiality and do not record our online meetings. 

Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required, nor having a Zoom account. A confirmation email will be sent upon registration with the Zoom link. If you do not receive the registration confirmation, please check your spam folder. Please plan to log in a few minutes early. 

We look forward to seeing you soon!

 This is a Virtual Event. 
Facilitator(s)
Members
  • Event List
Arthritis Foundation Event
  • Sunday, April 14th, 2024
    12:00 PM ET
    1h 30m
  • Virtual Event
  •   13 people attending
Psoriatic Arthritis Connect Group – Experience Arthritis Friendly Movement

Join us on April 14, 2024, beginning at 12 pm ET / 11 am CT / 10 am MT / 9 am PT for a 90 min arthritis friendly movement experience. We are delighted to have Priyanka Varma, M.S., RYT-500 joining us for Functional Yoga for Arthritis that does not require getting down on the floor. This session will be a practice of simple movements to mobilize all the joints of the body, increase flexibility of the joints and manage the pain, because the more we move our joints, the less the inflammation build up in that area. We might use some household props like a sturdy chair without wheels, thick book, a scarf, or bed pillows for the practice.

Priyanka Varma is a Pain Management therapist who uses ancient techniques combined with cutting edge research to help clients manage their pain better. She is an expert in Therapeutic Yoga, Pilates, Vacu-Cupping, Meditation, Stress Management and Energy Healing. She is currently pursuing a certification in Yoga Therapy, with focus on Yoga for Arthritis and Chronic illnesses. She has double masters in Statistics and Population Sciences. She’s co-founder of her company Prana Zone, whose motto is ‘Breath is Joy!’ Presently, she’s working with seniors in assisted-living and memory care facilities and working with several clients one on one in yoga therapy sessions, in-person and via Zoom.

After our presentation, there will be time to connect with others. Friends, Family, and Care Partners are always welcome to join meetings. We respect privacy and confidentiality and do not record our online meetings. 

Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required, nor having a Zoom account. A confirmation email will be sent upon registration with the Zoom link. If you do not receive the registration confirmation, please check your spam folder. Please plan to log in a few minutes early. 

We look forward to seeing you soon!

 This is a Virtual Event. 
Facilitators [3]
Members [176]

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Connect Group - National - Psoriatic Arthritis

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Comments [17]
CAROL R
CAROL R
February 28, 2024 - 12:09 AM

Hi, I have had my diagnosis recently changed from osteoarthritis to psoriatic arthritis.  I am greatly relieved to have a diagnosis that recognizes the inflamatory nature of my joint problems.  It has taken years of increasing painful joints to finally get this diagnosis and fighting with various doctors to get treatment as all my joints became involved and they kept insisting it wasn't inflammatory.  Recently I traveled 2 hours away to a bigger city to go to a rheumatogist.  Finally someone who believed me and explored my problems!  I was not expecting the psoriatic arthritis diagnosis.  I have had mild psoriasis since I was a toddler but I just didn't realize it was a factor until the rheumatologist cross examined me about flaking spots.  Recently my rheumatologist prescribed Rinvoq and it is really helping my severe joint pain and severe morning stiffness and my 'spots' are better than they have been in years. I joined this group to understand how others deal with this disease and the issues it causes.

Jaira B
Jaira B
February 24, 2024 - 11:10 PM

I need help with managing the fatigue. I can't function because of it. It's basically debilitating me. 

Brian A
Brian A
February 13, 2024 - 1:50 AM

Hello everyone, 

My name is Brian. I am 43, a husband, father and veteran still serving. I am fairly new to this. It has been nearly a year since my diagnosis and everyday is a new day. Feeling great in the morning or evening, fatigued most of the time, constant pain. What are things that can be done to have some consistency or plato the symptoms? 

Lydia B
Lydia B
January 14, 2024 - 5:11 PM

Tapping this on Sunday Jan 14, at 9:10 am Pacific time, with a "Waiting for the host to start the meeting" message on Zoom--do I hve the wrong time?

Danielle A
Danielle A
December 29, 2023 - 4:01 AM

Hi! I just recently joined the group! I'm hoping to find others who can relate to me with having PSA cause no one else I know has it. I'm 22, so I feel like I'm missing out on a lot because of my diagnosis. Glad to be here! Thanks Yall! 

Kellie J
Kellie J
December 19, 2023 - 6:18 PM

Hi Everyone, I am a brand new member....and I am definitely still finding my way around this social media medium.  Please forgive my ignorance.  I have a question for you'll.  My PSA has been diagnoses without bloodwork to support it.  I understand few people are seropositive.  But, I am struggling to come to terms with the dx.  Denial has been my friend.  If any of you have ideas or suggestions of things that support your dx even though you are sero-negative, please share this with me.  I am in my 60's and have suffered for many years.  Thank you!  Kellie

Caitlin W
Caitlin W
May 30, 2023 - 12:46 PM

Hey there - 

I hope veryone had a great Memorial Day Weekend! 

I wanted to check in - how has the change in weather impacted your PsA? If any?

Caitlin

Valerie J
Valerie J
May 29, 2023 - 9:41 PM

Hi

Second Valerie to join the group. 

Sorry to see others symptoms are greater than mine.  Skin is clear with meds, but joint stiffness has been a concern.  Staying active seems to help.

Look foreward to events and discussions

Caitlin W
Caitlin W
May 30, 2023 - 12:39 PM

Hi There - Welcome to the group! Safe space here - we are here to support you. 

 

What are you doing to stay active? I am currently biking whenever my body will allow me to.

Rodger S
Rodger S
May 19, 2023 - 6:03 PM

I am new to the group and was wondering which medication has worked well with psa.  I have tried skiyrizi, taltz and had infusions, now I am on Tremfya. I just started an injection with that. My Dr feels this will be the one.

has any one used Tremfya and if so how have the results been?

 

Rodger Smith

Caitlin W
Caitlin W
May 30, 2023 - 12:36 PM

Hi Roger - 

 

I was on Tremfya for a couple rounds and it didn't work for me - previously I was on Remicade and recently was able to get back onto infusions. Overall I think my body was going through a crazy transition and the pain was too much for me - I don't tie that to the drug.

Renee M
Renee M
April 26, 2023 - 10:28 PM

Thank you for allowing me to be part of your group.  Having PsA is frustrating in itself,  but I guess some consider me lucky since I don't have obvious psoriasis skin problems.  Mine are all internal, mixed with gout and possible  osteoarthritis in my cervical spine.  Also due to other health issues I can't take any ibuprofen or other meds similar to it for pain.  I was on a medication and had to stop due to liver damage.  Now trying to get insurance to approve biological meds

Caitlin W
Caitlin W
May 30, 2023 - 12:38 PM

Renee - how are you feeling now? I can definitely relate to the internal piece of PsA - the stomach issues and the other "fun" symptoms are tiring in itself. How can we support you here.

Sue R
Sue R
April 22, 2023 - 3:49 PM

Right now, i can't handle the depression 

Caitlin W
Caitlin W
May 30, 2023 - 12:37 PM

Sue - I am sorry for the delay here, how are YOU doing?

Renee M
Renee M
April 26, 2023 - 10:32 PM

Sue, I sorry about the depression as I have it also, but asked my Dr to give me a few months before she considers mens.  Don't get me wrong we all need a little help once in a while especially trying to deal with PsA.  Please discuss how you are feeling with someone because it can help alot. 

Sue R
Sue R
April 22, 2023 - 3:48 PM

Hi, I'm a new member but I've had psoriatic arthritis for over 12 years. I also have fibromyalgia  and depression.  

Vicki H
Vicki H
March 6, 2023 - 7:04 PM

New member here.  So happy to see the live yes psoriatic arthritis group. Like Valerie in the comment below, I'm hoping for an active support group. If nothing else, maybe Valerie and I can connect 😊

Vicki

Caitlin W
Caitlin W
March 6, 2023 - 7:18 PM

Hi Vicki!

 

Welcome to the group! We are so happy you are here. Please do sign up for the April 20th Meeting at 8pm EST / 5pm PST. I look forward to seeing you there.

Valerie C
Valerie C
February 27, 2023 - 8:53 PM

Hey folks!

Joining for the first time and having some difficulty finding info on when/ how to connect.

I hope there is an active support group!  I'm very keen on meeting other people who are dealing with PsA.  

Thanks for pointing me in the right direction...

Jenny C
Jenny C
April 23, 2023 - 1:53 AM

How do I sign up? I went to Events and I don't see a link or anything 

Caitlin W
Caitlin W
March 6, 2023 - 7:17 PM

Hi Valerie -

 

Welcome!! Please go to "Events" and sign up for our next session on April 20th at 8pm EST / 5pm PST. We look forward to welcoming you to the group and getting to know you better.

Theresa H
Theresa H
February 23, 2023 - 2:18 AM

Hey there! Just got the email survey regarding meeting times. I didn't see a box to put the info, but I generally work until 4:45 PST most weeks and would be late to a weekday meeting- how long do the meetings go, and is it okay if I join later in the meeting? I'd definitely vote for weekend meetings if at all possible. Excited to connect with the PsA group. :)

Caitlin W
Caitlin W
March 6, 2023 - 7:16 PM

Hey there - we got your response, thank you! Joining the meeting later is completely fine, no worries at all.

Caitlin W
Caitlin W
January 8, 2023 - 4:41 PM

Happy New Year! 

What is one thing you will like to focus on in 2023?

For me, I want to be better at listening to my body when it gives me signs that a flare up is coming vs. powering through the stiffness and pain.

Caitlin W
Caitlin W
February 21, 2023 - 1:06 AM

Let me know which techniques work for you! I am trying to get into mindfulness mediations as well :-)

Allie S
Allie S
February 20, 2023 - 4:10 PM

A little late, but Happy New Year! lol

This year, I am trying to incorporate short meditation sessions into my day to manage stress :)

Jane S
Jane S
December 29, 2022 - 1:29 PM

I'm not sure how this works, but am desperate for someone who understands, and can help me find my way back to positivity. Advanced Lymes Disease led to three types of arthritis, including psoriatic, and a life that I only sometimes recognize. I'm having a holiday flare now, and would like to learn to rewire my brain to better cope with the pain. I'm a strong Christian, and hope to connect with others on the same path as me.

Caitlin W
Caitlin W
January 8, 2023 - 4:43 PM

Jane - How are YOU doing? How has faith helped you in your journey? I have found prayer, meditation, and simply just havin support is so helpful in these challenging moments. I am here for you - please reach out if you will like to chat 1:1.