Welcome to the

Seattle Connect Group

Seattle, Washington
92 Members

Live Yes! Connect Groups offer local connections, education and empowerment. Adults living with arthritis from our local community come together for professional- and volunteer-led sessions on a variety of topics, as well as fun group activities.     

We offer a place of understanding and encouragement for both people living with arthritis and their loved ones. Group participants become self-advocates, develop self-management skills and learn how to not just survive life with arthritis but to thrive. 

Upcoming Events

Virtual Event
  • Sunday July 10th 2022
    12:00 PM
  • through
  • Wednesday June 22nd 2022
    12:00 PM
Seattle Virtual Connect Group July meeting: Sleep Solutions for Arthritis

Join us for our June 10th Live Yes! Connect Group VIRTUAL meeting – Sleep Solutions for Arthritis at 4pm Pacific. In June we looked at Fatigue and this month we will take a deeper look at Sleep. We will dive into the various causes of poor sleep in people who have arthritis. Learn about various strategies to counter causes of poor sleep and improve sleep quality. Identify causes of sleep disturbances in your own life and develop a personalized plan. After our educational session, there will be an opportunity to catch up and connect with others living with arthritis and share about how things are going. Friends, Family, and Care Partners are always welcome to join meetings. Please RSVP on our Connect Group page and I will send you the Zoom link on the Sunday morning of the meeting.

2 people attending Attend
Virtual Event
  • Saturday August 20th 2022
    1:00 PM
  • through
  • Saturday August 20th 2022
    03:00 PM
Seattle LiveYes! Connect August Virtual Tai Chi Meeting Collaborating with West LA

We are delighted to collaborate with the West LA Connect group again. They will have Kirsten Benson join them for an encore Tai Chi for Arthritis session on August 20th for our Live Yes! Connect Group VIRTUAL Meeting. Kirsten Benson has a BS in sports management and health. She has been an AFAA certified Group Fitness Instructor since 2007 and AFAA Personal Fitness Trainer since 2008. She upgraded her PFT to NASM. She has been a certified Tai Chi for Arthritis instructor since 2017 through the Tai Chi for Health Institute. She is also a Reiki Master and is completing her 200-hour Yoga Teacher Training. Her biggest passion besides fitness is gardening! Kirsten was diagnosed with Sjogrens in 2017 and has found that staying active has helped manage her symptoms. After our educational session, we will brainstorm ideas for future meetings and there will be an opportunity to catch up and connect with others living with arthritis. Friends, Family and Care Partners are always welcome. We respect your privacy and confidentiality and do not record our online meeting. RSVP is required to our Seattle Connect group page. A Zoom account is not needed to participate, and you can participate via video or phone. Video is not required. The Zoom link will be provided the day before the event to people who select the Yes button. If you do not receive the login credentials, please check your spam folder. Log in a few minutes before 1 pm. We look forward to seeing you soon!

2 people attending Attend
Facilitator(s)
Members
  • Event List
Arthritis Foundation Event
Virtual Event
  • Sunday July 10th 2022 12:00 PM
  • through
  • Wednesday June 22nd 2022 12:00 PM
Seattle Virtual Connect Group July meeting: Sleep Solutions for Arthritis

Join us for our June 10th Live Yes! Connect Group VIRTUAL meeting – Sleep Solutions for Arthritis at 4pm Pacific. In June we looked at Fatigue and this month we will take a deeper look at Sleep. We will dive into the various causes of poor sleep in people who have arthritis. Learn about various strategies to counter causes of poor sleep and improve sleep quality. Identify causes of sleep disturbances in your own life and develop a personalized plan. After our educational session, there will be an opportunity to catch up and connect with others living with arthritis and share about how things are going. Friends, Family, and Care Partners are always welcome to join meetings. Please RSVP on our Connect Group page and I will send you the Zoom link on the Sunday morning of the meeting.

2 people attending Attend
Virtual Event
  • Saturday August 20th 2022 1:00 PM
  • through
  • Saturday August 20th 2022 03:00 PM
Seattle LiveYes! Connect August Virtual Tai Chi Meeting Collaborating with West LA

We are delighted to collaborate with the West LA Connect group again. They will have Kirsten Benson join them for an encore Tai Chi for Arthritis session on August 20th for our Live Yes! Connect Group VIRTUAL Meeting. Kirsten Benson has a BS in sports management and health. She has been an AFAA certified Group Fitness Instructor since 2007 and AFAA Personal Fitness Trainer since 2008. She upgraded her PFT to NASM. She has been a certified Tai Chi for Arthritis instructor since 2017 through the Tai Chi for Health Institute. She is also a Reiki Master and is completing her 200-hour Yoga Teacher Training. Her biggest passion besides fitness is gardening! Kirsten was diagnosed with Sjogrens in 2017 and has found that staying active has helped manage her symptoms. After our educational session, we will brainstorm ideas for future meetings and there will be an opportunity to catch up and connect with others living with arthritis. Friends, Family and Care Partners are always welcome. We respect your privacy and confidentiality and do not record our online meeting. RSVP is required to our Seattle Connect group page. A Zoom account is not needed to participate, and you can participate via video or phone. Video is not required. The Zoom link will be provided the day before the event to people who select the Yes button. If you do not receive the login credentials, please check your spam folder. Log in a few minutes before 1 pm. We look forward to seeing you soon!

2 people attending Attend
North Bellingham Golf Course 205 W. Smith Road Bellingham, Washington Get Directions
  • Friday July 15th 2022 9:00 AM
  • through
  • Friday July 15th 2022 08:00 PM
2022 Freedom of Movement Golf Classic & 19th Hole Happy Hour

Fun day of golf, golfers and community members gather at the 19th Hole Happy Hour for delicious food, beverages, the awards ceremony, and to celebrate the day’s achievement. Funds raised from the Golf Classic support free Arthritis Foundation programs and activities throughout Whatcom County and the Pacific Northwest.

Green Lake Aqua Theater West Green Lake Way N Seattle, Washington Get Directions
  • Sunday December 11th 2022 12:00 AM
  • through
  • Sunday December 11th 2022 12:00 AM
2022 Jingle Bell Run - Seattle, WA

The Jingle Bell Run for Arthritis is among the nation's most incredible themed events. This fun and festive 5K race benefits the Arthritis Foundation's fight for the arthritis community - and helps conquer everyday battles through life-changing information and resources, access to optimal care, advancements in science and community connections. Wear your favorite holiday outfit, tie jingle bells to your shoelaces and help us find a cure!

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Comments [13]
Donna K
Donna K
June 19, 2022 - 6:35 PM

Hi - does anyone have experience of wearing sterling silver finger rings to help straighten top curved  finger joints?  If so - what type of ring did you get & was it helpful?

thank you 

DKramer

Kristen B
Kristen B
September 17, 2021 - 7:58 AM

 

Hi everyone. I'm peanut age 41 and RA hit me like "a ton of bricks" also. It was about a year ago when my entire body broke. I couldn't walk. I was truly scared. I didnt know what had happened. I just couldn't move without so much pain everywhere. They gave me a shot that helped for a week then it was right back to this horrific pain in my legs knees a hips that had me using a walker and cane for about 4 months .I've had neck and back chronic pain for years but this was different. The doctor took blood work x-rays and then refered me to an RA specialist but it took 6 months to get an appointment. So I've known for a while and the shock hasn't quite worn off but today it got real when I was started on methotrexlate and follic acid. I read many of you have been on or am on this drug but could you give some advice? Also things you do to fight the pain? How do you control your emotions and stay positive? Do you have kids? I do. Should I be honest about this or wait?; Also can someone explain flares? Is that what happened to me? 

 

I found this place tonight while taking a break from researching that methotrexlate. I'm glad to be here. I'm sure everything I asked has been asked before and I will look around. Just wanted to introduce myself and say I'm glad I'm here and you guys too. Also does anyone know of any zoom RA groups?

 

Carolyn C
Carolyn C
September 21, 2021 - 10:33 PM

Kristen,

I am so sorry it has taken you so long to start getting help. I have a few quick suggestions. This is one I wish I had known about early on--https://arthritis.theenthusiasticlife.com/. Cheryl Crow is a great resource. She has some kind of group for people who are newly diagnosed that sounds perfect for you called Rheum to Thrive. She will also do private consultations and her website has a ton of info. Also, the site Creaky Joints is useful. Johns Hopkins has several good videos on RA. This site, the Arthritis Foundation, has a lot of good info, but the website is really one of the worst I have ever run across for being able to find information, you really have to dig around. There are podcasts and videos in all sorts of places on the site, finding them  is not intuitive. The amount of info on RA is overwhelming, so I think Cheryl woud be the best first place to start.

I also take MTX and folid acid, but the MTX didn't do much for me so I am now also taking a biologic. However, MTX alone does work for a lot of people. I take mine by injection, which allows me to take a higher dose that you can usually take with pills. But you can see as you ramp up how it works for you. You do need regular blood tests while you are on it. I am assuming Teresa wrote to you about the Seattle RA Zoom group. Hope you will free to keep asking questions.

Best, Carolyn

Teresa  V
Teresa V
September 17, 2021 - 2:44 PM

Hi Kristen, Welcome to our Seattle Connect Group!

It sounds like you have had a very rough go of it in the last year! I am glad that you found our group and we do have monthly zoom meetings.Our next meeting is tentatively set for Sunday, October 17 from 4 to 5PM and when it is confirmed a message will be sent to all in our group, including you. Currently, most of the attendees including me have RA but some of us have OA or other arthritic conditions.We often discuss ways to deal with the pain and emotions that go along with our conditions. Most of us with RA are or have been on Methotrexate Folic acid is a B vitamin and is prescribed with Methotrexate (MTX) because Folic acid is depleted by the MTX and that is what causes many of the possible side effects (most commonly GI upsets). I have been on MTX for over four years and it has really helped me. Almost five years ago I began to ramp up my training for another marathon when I felt odd knee pain and swelling which intensified and soon included many other joints to the point that I could barely walk and my hands and wrists were very painful. Fortunately I was able to see a rheumatologist within three months (still too long) and begin methotrexate soon after. It took several months for the medicine to do its job but finally the pain and swelling went down. Currently I am able to walk miles and also run again, though slower and I have not attempted a full marathon but I have run several halfs. I say this to encourage you and advise you to stick with your treatment and rheumatologists recommendations. Some but not all have as much success with the first drug tried as I did. Your rheumatologist will monitor your progress and if need be change or add to your medications. What you are experiencing is a flare. Many people experience flares periodically, that is times when inflammation increases and symptoms are worse. Thus far I ahve been very fortunate and have not had a second flare. That is not to say I don't have daily symptoms/reminders that I do have RA. Some of our members do have young children and I hope you can discuss that with them. I have two grown children, now in their early thirties.

Kristen, I encourage you to explore the AF website (where you found our group) which addresses many of the concerns you raised. It is a little awkward to navigate but has a wealth of trustworthy information and is worth the effort. 

Also please feel free to send me a private message. Above the box where you posted your message there are four categories. This one is Discussions. To the left of it is Members and if you click on that you will see all our members, including you listed and there is an option to send any of them a message.

When a message is written in our Discussions any of our group can see it BUT only the facilitators are notified that there is a new message. I will send out a group message letting others know that there are new posts and asking them to take a look.

Warm regards, Teresa Van Horn

Carolyn C
Carolyn C
April 7, 2021 - 8:13 PM

Really glad we won't focus on what not to eat/eliminate  at this session. Those conversations stress me out! I would be interested in hearing about supplements and especially which ones interfere with each othe if taken together. Or, which might interfere with meds if taken at the same time. Am interested to know if anyone takes alpha lipoic acid.

Teresa  V
Teresa V
April 7, 2021 - 8:39 PM

Great questions! Please do raise them at our next meeting. And perfect timing, I was just going to email you. I just found out about a Pharmacist Q&A that is going to be on the AF website. They want us to submit our questions by 4/8. Both supplements and questions about biologics might be asked and addressed here.

https://liveyes.arthritis.org/#/Replies/10781/0

You may need to be logged in to use it but if this link doesn't work for you, contact me directly and we will figure it out!

 

 

Carolyn C
Carolyn C
November 22, 2020 - 6:51 PM

Hi, I am looking forward to the session today. Assumng the link will be sent out this afternoon? I am also wondering if anyone has looked into interactions with taking folate and food and especially drinking tea. I just found some studies online at reputable sites like NCBI that indicate that tea hinders folate absorption. Wondering if others have looked into this as well.

Best,

Carolyn

Carolyn C
Carolyn C
November 22, 2020 - 6:51 PM

Hi, I am looking forward to the session today. Assumng the link will be sent out this afternoon? I am also wondering if anyone has looked into interactions with taking folate and food and especially drinking tea. I just found some studies online at reputable sites like NCBI that indicate that tea hinders folate absorption. Wondering if others have looked into this as well.

Best,

Carolyn

Teresa  V
Teresa V
October 22, 2020 - 5:10 PM

We held our monthly Connect group meeting last Sunday October 18.  In addition to continuiing our group consults with one another, we tried some yoga and hand and wrist exerrcises. November's meeting will continue the group consults and highlight some of the features and contents on of the Arthritis Foundation website. Tentatively the meeting is scheduled for November 15 at 4 PM.

Here are links to the exercises from our meeting and more. Also, please use our grroup "wall" to post links you have found helpful. We can share our personal experriences with websites and approaches here BUT that does NOT mean that the Arthritis Foundation endorses our specific websites or products.

YOGA RELATED Yoga exercises for folks with arthritis that Johns Hopkins has at their website.

https://www.hopkinsarthritis.org/patient-corner/disease-management/yoga-poses-for-arthritis-patients-from-johns-hopkins

https://rheum.tv/rheumtv/yoga-for-arthritis/

HAND AND WRIST EXERCISES

https://www.everydayhealth.com/hs/rheumatoid-arthritis/hand-exercises-for-rheumatoid-arthritis/

https://www.healthcentral.com/slideshow/hand-exercises-for-rheumatoid-arthritis?ic=6107

https://www.berkeleywellness.com/self-care/preventive-care/article/hand-exercise-arthritis?s=EFA_190115_AA1&st=email&ap=ed

Keep moving and stay well, Terresa

Carolyn C
Carolyn C
October 12, 2020 - 5:18 PM

Hello, I am newly diagnosed with RA, and adjusting to new realities as I had been used to being quite physically active and also using my hands a lot.  I am not sure what kind of information is shared via this message board. I would love any reccs for Seattle area PTs/OTs who are skilled in working with RA and osteoporosis. My Medicare PPO Advantage plan limits some of my options. I am also not sure how to best find out about any other local practitioners that members of this group have had good luck with.

Thank you.

Carolyn

Teresa  V
Teresa V
October 12, 2020 - 9:21 PM

Welcome to our group, Carolyn!  The Arthritis Foundation doesn't recommend specific therapists, HOWEVER please ask our group members at the Zoom meeting on Sunday and they can share their experiences and therapists who have helped them and other resources that they have found helpful.  You are asking the right kinds of questions.  I will also say that our arthritis "journeys" are all different, but please remain optimistic . I am also an active person who ran marathons, gardened and sewed a lot when I had my first encounter with RA over three years ago. Early in my RA journey, I went to an OT for several sessions and received some wrist and finger exercises and will share some of those at our Zoom meeting. (BTW I am a retired school-based PT.)  At first there were months when I could barely walk and needed to use two hands to lift a cup BUT with good medical care and medications (and dietary changes), I am back to running, though half-marathon has been my longest distance and I am sewing and gardening again. So hopefully, you will start to see improvements soon. Also, what helped me through those months was getting into a pool for twenty minutes and moving gently almost every day. I would be less stiff and with reduced pain afterward.  I know that is much harder now in the times of pandemic, but perhaps showers and baths can help if you can't access a pool.  Looking forward to seeing you at our Zoom meeting! Teresa

Teresa  V
Teresa V
October 12, 2020 - 9:21 PM

Welcome to our group, Carolyn!  The Arthritis Foundation doesn't recommend specific therapists, HOWEVER please ask our group members at the Zoom meeting on Sunday and they can share their experiences and therapists who have helped them and other resources that they have found helpful.  You are asking the right kinds of questions.  I will also say that our arthritis "journeys" are all different, but please remain optimistic . I am also an active person who ran marathons, gardened and sewed a lot when I had my first encounter with RA over three years ago. Early in my RA journey, I went to an OT for several sessions and received some wrist and finger exercises and will share some of those at our Zoom meeting. (BTW I am a retired school-based PT.)  At first there were months when I could barely walk and needed to use two hands to lift a cup BUT with good medical care and medications (and dietary changes), I am back to running, though half-marathon has been my longest distance and I am sewing and gardening again. So hopefully, you will start to see improvements soon. Also, what helped me through those months was getting into a pool for twenty minutes and moving gently almost every day. I would be less stiff and with reduced pain afterward.  I know that is much harder now in the times of pandemic, but perhaps showers and baths can help if you can't access a pool.  Looking forward to seeing you at our Zoom meeting! Teresa

Krystal S
Krystal S
March 8, 2020 - 7:57 PM

Hello Seattle Live Yes!Connect group members. Teresa Van Horn has decided to step up and join in co-facilitating this group. As a retired physical therapist, Teresa has had much to offer the group for many years and it is exciting to have her in this new role. Long-time co-facilitator Claire Catania has decided to step down as co-facilitator because she is super busy in her new role as the Executive Director of the Seattle Audobon Society! We decided not to have a March meeting in light of recommendations from the King County Department of Public Health regarding limiting the spread of the COVID-19 virus so for now, let's support one another on-line. Please take a couple of minutes if you get a chance to log on to https://connectgroups.arthritis.org/, congratulate Teresa and Claire, and post an introduction of yourself to the group. Include your name, where you are from, anything else you would like the group to know about you, and a goal you hope to attain. We look forward to conversing with you. Kind regards, Krystal Smith, Seattle LiveYes!Connect Group Co-Facilitator, [email protected]

Krystal S
Krystal S
February 19, 2020 - 5:32 AM

Hello LiveYes!Connect Seattle group members. What do you do to cope with flare-ups? Having osteoarthritis, whenever the barometric pressure drops, my knee hurts and it is hard to walk. I usually end up walking shorter distances until things go back to normal and turn to hobbies such as crochet or reading. I was wondering what remedies others have tried.

Krystal S
Krystal S
October 27, 2019 - 1:16 AM

The October event of the Seattle LiveYes!Connect group is tomorrow, Sunday, October 27th, at 2:00 PM. We are attending a classical music event at Town Hall Seattle, 1119 8th Ave, Seattle, WA 98101.

Carol S
Carol S
October 18, 2019 - 5:18 PM

Hey All, I've just attached myself to the Seattle group. Heres hoping that the Connect site is mended soon; I'm hoping for the "pings" to happen again. If things are fixed by tomorrow, the Seattle folks can see that the CoalCreek YMCA and the Eastside group is hosting Trevor Petrie, hand therapist, at 10 am October 19th. Please join us.

Krystal S
Krystal S
October 13, 2019 - 11:00 PM

Check the Seattle LiveYes!Connect site for details on our October meeting.

Krystal S
Krystal S
September 2, 2019 - 8:53 PM

If you received an e-mail from me, you may have the incorrect date for our next meeting. The September meeting date is 9/22. I apologize for the confusion.

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