Welcome to the
Orlando - East Connect Group
Orlando, Florida
37 Members
Live Yes! Connect Groups offer local connections, education and empowerment. Adults living with arthritis from our local community come together for professional- and volunteer-led sessions on a variety of topics, as well as fun group activities.
We offer a place of understanding and encouragement for both people living with arthritis and their loved ones. Group participants become self-advocates, develop self-management skills and learn how to not just survive life with arthritis but to thrive.
Upcoming Events
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Monday, June 10th, 202410:00 AM ET1h 30m
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Virtual Event
- 1 person attending
Join us on June 10th 2024 for the Orlando East Live Yes Connect group
Topic - Arthritis Awareness Cafe.
It's a welcoming space for anyone affected by arthritis whether it's you yourself living with it, or you are a caregiver.
We are here to share our experiences, foster support and understanding our group meetings are designed to provide a platform for discussing all aspects of arthritis from coping mechanisms to treatment options to advocacy efforts and more.
The gathering this time will be on zoom and if I get enough positive feedback maybe our next meeting will be in person at a local restaurant or coffee shop.
In addition to discussing our personal experiences and challenges we will dedicate the time to advocacy discussions empowering members to Advocate not just for themselves but for others within the arthritis community please bring your favorite beverage or snack and we'll see you then.
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Thursday, April 25th, 2024
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Virtual Event
- Event List
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Monday, June 10th, 202410:00 AM ET1h 30m
-
Virtual Event
- 1 person attending
Join us on June 10th 2024 for the Orlando East Live Yes Connect group
Topic - Arthritis Awareness Cafe.
It's a welcoming space for anyone affected by arthritis whether it's you yourself living with it, or you are a caregiver.
We are here to share our experiences, foster support and understanding our group meetings are designed to provide a platform for discussing all aspects of arthritis from coping mechanisms to treatment options to advocacy efforts and more.
The gathering this time will be on zoom and if I get enough positive feedback maybe our next meeting will be in person at a local restaurant or coffee shop.
In addition to discussing our personal experiences and challenges we will dedicate the time to advocacy discussions empowering members to Advocate not just for themselves but for others within the arthritis community please bring your favorite beverage or snack and we'll see you then.
-
Thursday, April 25th, 2024
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Virtual Event
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Monday, May 13th, 2024
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Virtual Event
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Thursday, May 23rd, 2024
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Virtual Event
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Thursday, June 27th, 2024
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Virtual Event
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Saturday, September 21st, 2024
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Saturday, December 14th, 2024
Facilitators [1]
Members [37]
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Connect Groups - Orlando - East
Comment
Comments [12]
Hi everyone its Deb Andio
I am the Facilitator for this group Orlando East on 4/8/2024 I was to have a meeting on Zooming through the pain,
however the arthritis site was down and I could not notify everyone that it was cancelled due to no zoom hoist link generated. I
will reschedule it for May. I apologize for any inconvience this may have caused.
Thank You
Hello everyone!
My name is Karly. I am just under 2 weeks into this whole journey. I got my diagnosis very quickly, compared to what my pcp was warning me that it would take (which was strange to me because my journey was started by lab tests and not from symptoms that I noticed). I'm still kind of in shock that I've been diagnosed with rheumatoid arthritis and while I have random flare up days (I think. I don't really know what's going on yet), most days I feel normal. I was told that they caught it early enough to get me on medication before any joint damage happens, so I feel lucky, but I also feel like a fake because I don't have intense pain yet. Right now I am on a prednisone taper and hydroxychloroquine. Right now, my mental health is being hurt the most because I'm just kind of confused and no one in my friends/family group understands what I'm going through. I'm happy to find a group of people who know what this journey is like.
Hello Karly, and a warm welcome to you!
This community embraces individuals dealing with all forms of arthritis. Receiving a diagnosis of rheumatoid arthritis aka RA might seem daunting,
yet there are proactive measures you can adopt to effectively navigate your condition. By educating yourself about RA initiating
appropriate treatments, and adopting beneficial lifestyle habits, you can significantly mitigate discomfort and symptoms.
This enables you to engage once more in the activities you cherish. Utilize the resources available here to begin your journey toward taking charge of your well-being.
Also check out these links
https://www.arthritis.org/health-wellness/healthy-living/emotional-well-being/emotional-self-care/adjusting-to-a-new-ra-diagnosis
https://www.arthritis.org/newly-diagnosed
Hey everybody! My son (12) just got diagnosed with JIA a few weeks ago and we are trying to navigate things from medication to lifestyle changes. Any input, recommendations really anything that anyone has to share about JIA we would love to hear. I am also curious do you find that they seem to have other issues along with JIA. We are seeing about 8 specialists at this point trying to get a care plan together because he has so many areas affected by inflammation. We also found out he has HLA B-27. Looking forward to hearing from everyone. Thank you!
Hi Amanda
Here is info that may help you,help your son. Also there are groups for parents with kids with JA and groups for kids as well.
Check out the groups by topic area for Parents with kids with JA
Here are some links
https://connectgroups.arthritis.org/groups/national-ja-parent-middle-school
https://www.arthritis.org/health-wellness/healthy-living/emotional-well-being/emotional-self-care/take-control-of-a-new-ja-diagnosis
Good Morning, My name is Johnathan and my son has been suffering with JIA for awhile now. He was taking Methotrexate once a week and Humira every two weeks. He appreared to become sick from the Methotrexate and after talking to his doctor we have stopped both of the meds. He has been feeling better and eating well. Today he woke up with knees slightly swollen, indicating a flare up. We have been looking for alternate treatment for him. Has any tried a more holistic approach to treatment with any success?
Thanks for sharing
HI I am a new Facilitator ,
Wanted to reach out.
Not sure your age of son but check out these links
Here is info that may help you,help your son. Also there are groups for parents with kids with JA and groups for kids as well.
I am no doctor, just a volunteer facilitator but
Cold packs, hot packs, or a hot bath/shower can help reduce symptoms of JIA.
Heat works best to relieve stiff joints and tired muscles, especially first thing in the morning. Cold numbs painful areas and reduces inflammation.
Eating a healthy diet can help reduce inflammation in the body
Check out the groups by topic area for Parents with kids with JA
Here are some links
https://www.arthritis.org/health-wellness/treatment/complementary-therapies/natural-therapies/cam-therapies-to-try-for-juvenile-arthritis
https://www.arthritis.org/health-wellness/treatment/complementary-therapies/natural-therapies/cam-therapies-to-try-for-juvenile-arthritis
https://www.arthritis.org/health-wellness/healthy-living/emotional-well-being/emotional-self-care/take-control-of-a-new-ja-diagnosis
Did your rheumatologist talk with you about Plaquenil (hydroxychloroquine)? I'm 23, had undiagnosed JIA that transitioned into RA. My doc started me on Plaquenil once a day and slowly increased to two. I told her I had extreme sensitivity with eating & taking pills, so she said Plaquenil is one of the safest & best options to start on. I also get prescribed nausea medication to help with the sickness. I know a lot of people have also found success using CBD for RA & nausea.
Grab your favorite morning beverage and join us as we chat with Dr Sue Curfman on Osteoarthritis Pain, and management
04/08/2023
11am ET to 12:30pmET
Topic Osteoarthritis with Speaker Dr. Sue Curfman
Osteoarthritis is one of the most common forms of arthritis, affecting over 27 million Americans.
As you age, your risk can increase, but nearly one third of people with osteoarthritis report being diagnosed much earlier in their life.
Today Dr. Sue Curfman will join us as we talk about pain, pain management and How to Live Well with Arthritis.
Dr. Sue Curfman is an Orthopedic Certified Specialist through the American Board of Physical Therapy Specialties.
She earned her certification as a manual therapist through the University of St. Augustine. Dr. Curfman has more than 30 years of experience
in a range of clinical and teaching primarily in the areas of anatomy, kinesiology and orthopedics and joined the Belmont University School of Physical Therapy in 2021.
registration link
https://arthritisfoundation.zoom.us/meeting/register/tZwrfuGhqzwrGtSOhnAYpa3l7gfG-oPEgh8p
registration link
You can use this link to register for the event on 12/03/2022
Holidays and Arthritis from 10am ET to 11am ET
. https://arthritisfoundation.zoom.us/meeting/register/tZIuce2srTgtEtIrcLmcFG1XvQEW-PYjlomQ
Hi everyone I am postin the registration link here for 11-13-2022 virtual event on zoom
Please call me in advance of Sunday if you need 1:1 help with this. I am at 978 697 8880
So if you lose it just come back here to the discussion tab
We are looking forward to seeing ALL of you on this Sunday, November 13, 2022 for our event "East West and Me: A Physician's perspective
the time for this event is: 3 PM EST, 2 PM CST, 1 PM MST, and 12 Noon PST - check YOUR time zone
Here is the registration link for the upcoming event. You need to click this link and fill out a few small items to get the direct zoom link. Click this link to login a few minutes early on the day of our event.
https://arthritisfoundation.zoom.us/meeting/register/tZ0oc-Ctqz4oEtBOm6tCQX27W5ltDwwIIhhQ
Hi I am Deb Andio the facilitator for Orlando East Connect Group.
for all events and I will usually post the registration link a few days before the event
Registration is required to receive the Zoom link to participate via video or phone. Being on video is not required nor having a Zoom account. A confirmation email will be sent upon registration.
The Zoom link will be sent the day of the event to those who RSVP. Please plan to log in a few minutes early. If you do not receive the link, please check your spam folder.
If you need additional login information please visit our connect group’s discussion tab, We look forward to seeing you soon!
if you have any questions please message me
my cell phone is
Deb Andio
330-565-0040
Hello, my name is Tiffany. I have recently been diagnosed with RA and I was wondering if anyone could recommend me a good holistic doctor. Thank you.
Hello! Wanted to remind everyone that tomorrow is the Kick-Off event for the Walk to Cure Arthritis. Please join us at Rock & Brews (6897 S. Semoran Blvd) from 10am-noon to enjoy food, games and live music. Also if you do not have a team for WTCA, please feel free to join our Live Yes! Connect Groupies team!https://events.arthritis.org/team/21150
Just wanted to share that there is a new "Live Yes! with Arthritis" Podcast. Topics will vary but so far they've talked about things like diets, mindfulness and CBD. If you are interested in checking it out you can find it on Apple Podcasts, Spotify, Stitcher, and pretty much anywhere you listen to podcasts. Here's a link to learn more: https://arthritis.org/liveyes/podcast?_ga=2.30440127.1271097428.1581368967-785213556.1581368967
Hello, my name is Wanda. I have had RA for 34 years now. I am scheduled for a shoulder replacement Nov. 5, 2019. I was wondering if anyone has had a shoulder replacement? I am kind of scared and excited, but I know that it has to be done. Wish me luck. Thanks, Wanda
Hello Wanda! Hope you are doing well since your shoulder replacement. How did it go? I haven't had shoulder replacement, but have had both hips replaced. It was quite an experience!