West Los Angeles Connect Group

Hi,

I just learned that I have RA in my hand and sadly my current younger doctor seems like she doesn't cares since she just told me to take supplements.No suggestion of hand therapy, gut health, or even diagnosing my hand except for a visual, "Oh yeah, I can see your thumb also has arthritis (outside of my pinky with this noticeable bump on the first joint.) 3 months ago she determined the bump was an insect bite. Being a past healthcare advocate since 2009 with LA CARE HEALTH PLAN,(I left this position last year) but I immediately began to learn more about RA and suggested what she should of offered as a doctor. Maybe it's time to find another doctor who meets my expectations more. Anyway, I guess this will be my first encounter with my aging body that needs careful adjustments to prolong the usage of my hands. Any suggestions will help since if I lose the usage of my right hand I will have a difficult time living my creative life. I'm a graphic designer, uses computers, likes to cook fresh meals daily and grow my produce. My hand hurts and my bones keep making cracking sounds, Luckily I purchased the SPORTS RESEARCH OMEGA-3 oil 180 softgels prior to my discovery of RA. I will start taking these today!! Wondering if it's ok to stack other glucosamine chondroitin supplements, probiotics, etc.. without overdoing it? What has worked for you with RA hand issues? My moms fingers are all twisted up and she's 88 yrs old. I want to prevent my hands from getting that way! Thank you for reading this!

Hello All, 
I'm newly diagnosed with RA. Does anyone have any advice on pain management for burning/soreness in the ribs and back? Any recommendations for medications that may work and target my chronic pain? 

Thanks, 
Estee 

Hello,
I just joined this group. I live in WLA and am looking for a support group for those with rheumatoid arthritis, either online or in person.
I am looking to  learn the expereince of others with this disease and how they manage with it. 
And chronic pain management.
Any leads are appreciatted.
Thanks.
Audrey

Hello everyone,

For those close to El Segundo, there is a fundraiser for fellow Connect Group member and LA Board Member, Carly Panchura’s Walk to Cure Arthritis Team next Friday! 

Friday, May 3rd from 11:30 am to 10:00 pm

Rock & Brews Fundraiser

143 Main St, El Segundo, CA  90245 

Flyer here: FLYER for Rock n Brews Fundraiser May 3 2024.pdf

Link for tomorrow 

Saturday, August 12, 2023

1- 3 pm PT

Let's talk Pain Management and Arthritis

Zoom link: https://arthritisfoundation.zoom.us/meeting/register/tZctceGgqTItE9OFwtGTPGBUl3_gJLQM4qtA

Please log in a few minutes early!

HI HI HI

The link to join us tomorrow, Saturday, August 11, 2023, 1- 3 pm PT for Let's talk Pain Management and Arthritis is:

Zoom link: https://arthritisfoundation.zoom.us/meeting/register/tZctceGgqTItE9OFwtGTPGBUl3_gJLQM4qtA

HI HI HI

the link to join us Saturday 7/8 at 1 pm PT for our next Live Yes! Connect Group VIRTUAL Meeting – Coffee and Conversation Traveling with Arthritis is

https://arthritisfoundation.zoom.us/meeting/register/tZIsdemprzkqHtXqsJLx4jF4MeG1zHvaoLXi

Haydee Sedlmeier 

HI All

We are looking forward to seeing you on Saturday, Feb 11th for Let's Get Creative   at 1pm PT / 2 pm MT/ 3 pm CT / 4 pm ET.  Here is the zoom link for the event    https://arthritisfoundation.zoom.us/meeting/register/tZElc-ytqz0tHdMG7NslGomioxV0U3MPs_c8

Click this link to login a few minutes early on the day of our event.

See you soon!

HI All

We are looking forward to seeing you on Saturday, January 14th for Lets Connect  at 1pm PT / 2 pm MT/ 3 pm CT / 4 pm ET.  Here is the registration link for the event https://arthritisfoundation.zoom.us/meeting/register/tZEpcu2vrDwjH9adfsOlHrsM3LcwcdlWYOJH

Click this link to login a few minutes early on the day of our event.

See you soon!

HI All

We are looking forward to seeing you on Saturday, December 10th for Gentle Yoga and Holiday celebration  at 1pm PT / 2 pm MT/ 3 pm CT / 4 pm ET.  Here is the registration link for the event https://arthritisfoundation.zoom.us/meeting/register/tZcqf-mqrTgqH9SyDpTZuPzJaaElWux-p3rC

Click this link to login a few minutes early on the day of our event.

See you soon!

HI All

We are looking forward to seeing you on Saturday, November 12th for Holiday Hacks at 1pm PT / 2 pm MT/ 3 pm CT / 4 pm ET.  Here is the registration link for the November 12h event https://arthritisfoundation.zoom.us/meeting/register/tZcrf-muqT0sE9H6d85DSQKhF4juwxQxPnnQ Click this link to login a few minutes early on the day of our event.

See you soon!

Anyone  with experience. With osteoarthritis in knee and treatment options?  Just had a follow up with Ortho and feeling very discouraged about my future and ability to resume normal activites.

HI HI HI - I hope everyone got a chance to participate in Pain Awareness Month - visit: https://www.arthritis.org/realpain and learn now to get a free e-book!

Pain Awareness Month - tune in on September 29- Podcast: Building Your Personalized Pain Plan Tune in on Tuesday, September 8, 2020, and learn about Building Your Personalized Pain Plan with our guest experts Rachel Aaron, Ph.D. and Claudia Campbell, PhD from Johns Hopkins University School of Medicine. They will discuss how to recognize unique triggers and challenges that affect your pain and what you can do about them and share information about ways to participate in a new NIH funded study to compare different CAM therapies for chronic pain. Learn more at https://www.arthritis.org/liveyes/podcast.

Pain Awareness month - Join us for a Facebook Live on September 24 - Facebook Live: Expert Q&A: Practical Strategies for Arthritis Pain – 6 pm to 7:15 pm EST Join us for a Facebook Live event: on Practical Strategies for Managing Pain with an integrative pain specialist, a pain psychologist, and a fitness expert on Thursday, September 24, 2020, at 6 pm to 7:15 pm EST. Tina Doshi, MD, M.H.S., Johns Hopkins University School of Medicine, Cedric Bryant, Ph.D., FACSM, American Council on Exercise, and Wesley Gilliam, Ph.D., LP, Mayo Clinic will provide practical tips and strategies for taking control of arthritis pain drawing from their expertise in physical activity, pain psychology, and integrative pain management. Use this link for the Facebook live event: https://www.facebook.com/events/315570059747518/

Pain Awareness Month - Join us on September 9 - Webinar: Arthritis Pain Management Strategies: Backed by Research – 6 pm – 7 pm EST Register today for the upcoming webinar on Pain Management Solutions Backed by Evidence on Wednesday, Sept. 9, at 6:00 p.m. ET. Learn about the research behind various pain management strategies and which solutions experts recommend “for” and “against.” We’ll also discuss some controversial therapies, and there will be time for Q&A with researcher and expert in osteoarthritis Dr. Amanda Nelson Registration is now open and space is limited: http://www.cvent.com/events/arthritis-pain-relief-strategies-backed-by-research/event-summary-c3a71f72b5c0444f8e490df039129796.aspx

Pain Awareness Month - Tune in on Tuesday, September 8, 2020, and learn about Easing Back Pain with our podcast guests Rita Roy, MS, MD CEO, National Spine Foundation, and Jed Finley, Ankylosing Spondylitis patient advocate. They will discuss common causes of arthritis-related back pain and offer strategies for coping and pain relief. Learn more at https://www.arthritis.org/liveyes/podcast Then meet in the Online Community and continue the discussion in the Hot Topic – Pain Awareness Month Strategies and Solutions Discussion and share what you learned.

listen to the latest podcast: Staying active and connected with others is a problem for many with arthritis, but it is particularly difficult during this crisis. The new podcast shares how you can stay connected and active while staying at home: bit.ly/2ztbCqD

how are you staying physically active during this time?

Join us for a Special Arthritis Foundation on Facebook Live event Survive & Thrive: COVID-19 LIVE Celebrity Challenge at 8:00 pm ET, April 22 Mark yourself as “interested” in or “going” to the event on our Facebook Event Page - https://www.facebook.com/events/239875087382854/ Share the event on your personal Facebook pages. For more details see press release - https://www.arthritis.org/about-us/news-and-updates/survive-thrive-covid-19-live-celebrity-challenge

Share your tips on how you are staying positive or your favorite pastimes or activities

We are searching for warriors to serve on our Walk to Cure Arthritis Warrior Committee. As part of the warrior committee, you would work with other warriors to help make the Walk as accessible and fun as possible. We want to brainstorm effectively and plan a great day for everyone, whether they can walk or not. In short, we’re looking for people who want to create great experiences for those living with arthritis and are passionate about the cause. This wouldn't be a huge commitment, just trying to get some input for ideas to make it great for EVERYONE. Please let our Walk Chair, Katy Carter [email protected] know if you or someone you know might be interested in helping out.

HI All, Our Social Media team is looking for feedback from Connect Group members. Examples of the type of comments they are looking for are: How has the group helped you, share something positive to say about the group etc. Please email [email protected] with your comment/sound byte and photo of yourself

Join us at our flagship fundraising and awareness event - the Walk to Cure Arthritis on Sunday May 17, 2020 at the Los Angeles State Historic Park - 1245 North Spring Street Los Angeles CA 90012. Grab your friends, family, and collegues and join us at this dog friendly event. For more details and to join our team visit: https://events.arthritis.org/team/LYConnectGroup-West-LA

Join us at the Arthritis Foundation Live Yes! INSIGHTS LIVE Saturday, March 21, 2020.11AM – 2 pm at the Four Seasons Hotel Los Angeles at Beverly Hills 300 South Doheny Drive Los Angeles, CA 90048. This special in-person dialogue discussing what we've learned from Live Yes! INSIGHTS. The event will feature lunch, a discussion of findings from one of the largest arthritis patient-reported outcomes assessments, a collaborative workshop, interactive showcase and more. Registration required: Visit this link to Register - https://nam02.safelinks.protection.outlook.com/?url=http%3A%2F%2Fgo2.arthritis.org%2Frb0m0C2G1WpjJ7Q1g00Q0v0&data=01%7C01%7Chsedlmeier%40arthritis.org%7C04cc8172caf94f01947a08d796147ea1%7C05878ac9807a474d8299164762e86c2a%7C1&sdata=O9qRJLdVq9Jl11gtNN6i4bu55F1bWeWqGRE8vms0Xto%3D&reserved=0

Join us at our Arthritis Foundation Los Angeles: Open House on Sunday, February 9th, 2020, 2:00 – 4:00 pm at Karl Strauss Brewing Company Downtown Los Angeles- 600 Wilshire Blvd, Los Angeles, 90017. The Open House is to welcome members of the arthritis community, celebrate our successes of the past year, and recognize our valued community partners and volunteers. Please RSVP to this event by contacting Laura Ealy, Community Engagement Director, [email protected] or 213.634.407. Space is limited!

What topics are interested in learning about in 2020?

If arthritis were an animal, what would it be and why?

Hi All - Do you know that the Arthritis Foundation have a new podcast? Check out @ArthritisFdn first

HI ALL - I invite you to Join our Live Yes! Connect - WLA Jingle Bell Run team on 12/14 at Woodley Park. Our team is primarily our family, friends and colleagues who love to run or walk. It is a timed race for the serious runners. We will have activities for Arthritis Warriors if the physicality of the event is too challenging. Let's run, walk and/or cheer our team members on as we participate in this awesome festive fundraising and awareness event. Join our team today at: https://events.arthritis.org/team/LYCG-WLA

The Topic during our November meeting was Thriving During the Holidays. My two personal favorite life hacks include: 1. online shopping and building in time for self care. What are tips you would like to share to make the holidays easier for you?

Welcome to the WLA Live Yes! Connect Group page! Please take a moment and introduce yourself.